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Autism Speaks connects families and caregivers of children with autism to essential skills through Caregivers Skills Training program… Caregiver Skills Training (CST) for Families of Children with Developmental Delays or Disabilities, developed with the support of Autism Speaks, addresses the lack of specialized care available in some parts of the world and teaches caregivers … courses and digital content, including quick tip videos, quizzes and prompts, to caregivers who lack access to in-person group trainings,” said Dr. Chiara Servili, who leads WHO’s work on the mental and brain health of children and adolescents. … participants gain insight directly from trained community members and other families to further strengthen their local support network. In delivering resources to help children with autism and their families reach their full potential, Autism …
“Adulting on the Spectrum” with Autism Speaks… Our Facebook group, “Adulting on the Spectrum,” was created last summer to provide a space for autistic adults to cultivate friendships, find support and have fun. The moderators of the group, Andrew Komarow and Eilieen Lamb, are autistic adults themselves, and all … newfound information had impacted my life with those around me and watch them adapt as well. What made you become a voice/supporter/advocate of the autism community? I really saw a need for autistic voices to be heard, and when I say autistic …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
A guide to resources we offer from screening to adulthood… an autism diagnosis and in accessing related services. To help reduce this disparity, we are committed to providing support to our Hispanic community. Resources At autismspeaks.org you will find a tab, ¿Que es el autismo? which provides … their child’s autism diagnosis. Manual de Defensa helps autistic individuals and their families advocate for services and supports they need. Manual de Planificación Financiera provides parents tips on accessing financial support and planning … Tony’s experience adulting on the spectrum. Social Media Voces Latinas de Autism Speaks is our Spanish speaking Facebook group to support parents and autistic individuals. Through this network, we share resources and experiences to build our …
Growing up gay and autistic: One man's journey to overcoming bullying and finding acceptance… over everything and consequently became “the weirdo” of the class – teased, picked last for teams, told he couldn’t be in a group or sit in a certain seat on the bus. In sixth grade he had developed a love of Harry Potter. He would watch the movies … lawsuit. Note: If you’re thinking about suicide, are worried about a friend or loved one, or would like emotional support, the 988 Suicide & Crisis Lifeline network is available 24/7 across the United States. It is free and confidential. … I mattered to my mom," he said. In addition to intense individual and family therapy, Julian and his mom started attending support groups and socials at the local gay and lesbian community center. They developed a crisis plan for Julian if he had …
Meet Miles W.… showing signs of delays, my initial thoughts were of worry and fear. At the time, I wasn’t sure what I should be doing to support him, but I prayed a lot and asked the Lord to order my steps. I sought out speech and group speech therapies, as well as occupational therapy in school. Outside of school, I enrolled Miles in Tae Kwon Do, … be a greater focus on transition services for teens and young adults who have aged out of educational programs or community supports. Organizations like Autism Speaks need to continue to build relationships with companies to provide employment …
Meet Barry and David B.… David move into his own home about 15 miles from our family home when he turned 37. I never wanted David to live in a group home, but I knew he would always need to be cared for 24/7. With that said, I took it upon myself to develop a system … time perfecting the care system that would provide David with a regimented routine of basic life skills and a stable daily support system he would need to one day live on his own. “Finding the right people to care for David and implement this … for him similarly to the way his family would care for him. It’s also a testament to David’s personality.” Today, Barry supports the life-enhancing research work of Autism Speaks with hopes of improving the lives of people severely impacted by …
Meet Andrew S.… and therapies, his mom says he still faces challenges with finding the right words to hold a conversation and needs extra support with daily life skills. But it’s his strengths and weaknesses that make him who he is. Since her son’s … on or resources to navigate the various challenges that can come with feeling like an outsider. “I’m part of a Facebook group where I’ve heard from many families that they feel alone. I have told them about the abundance of resources at Autism …
Meet Mallory F.… therapy services in the community and clinical settings. Being on the spectrum allows me to connect with the kids I support unlike anyone else on my team. I get it—I know exactly what they are going through. So, I’m going to take what I … perform better if they have the right accommodations. For instance, I struggle to verbalize deep aspects of my life to a group of five strangers, but I’d happily tell those five people individually the exact same thing! Help people do the best …