Autism Speaks controversy - Our perspective
For more than 20 years, Autism Speaks has worked alongside autistic people and their families to create meaningful change. Today, our work spans advocacy, research, programs and services — shaped by the experiences and priorities of the autism community.
See who we are today and where we’re headed through our Redefine Possible strategy.
Autistic leadership
Autistic people help lead and shape the work of Autism Speaks — on our Board of Directors, on our Medical and Science Advisory Committee, across our staff, and through programs like Champions of Change and Emerging Leaders.
Their perspectives influence the programs we build, the policies we advocate for and the way we communicate about autism. We also regularly bring together autistic people, families, healthcare professionals, researchers and advocates through roundtables and community conversations that help guide our work.
Creating change at scale
Our advocacy has helped secure more than $5.2 billion in federal funding for autism research, training for medical professionals and the development of evidence-based services.
We helped secure autism health insurance reform in every state. We advocated for the creation of ABLE accounts, giving people with disabilities a way to save without jeopardizing federal benefits. We helped pass Kevin and Avonte’s Law, which funds programs designed to prevent wandering-related injuries and deaths. And since 2007, we have provided more than $16 million in community grants to local organizations across the country.
Today, our advocacy continues to focus on the issues that affect autistic people throughout their lives — from healthcare and education to employment, housing, community living and support for people with the highest support needs.
Where we stand
People ask us about our positions on research, therapies, how we spend donor dollars, and our logo. Here’s where we stand.
Our approach to research
There is no cure for autism, and we do not support research searching for one.
Our research investments focus on improving quality of life, expanding healthcare access and understanding the diverse needs of autistic people across the lifespan. Our genetics research, including our PATH to Discovery program, seeks to better understand biological differences and co-occurring health conditions so autistic people can receive healthcare that is more personalized to their needs. Our global public health research helped inform the World Health Organization’s Caregiver Skills Training program, now implemented in more than 30 countries.
Therapies and supports
Every autistic person is different, and no single approach is right for everyone. We believe autistic people and families should have access to reliable information and the ability to choose the therapies and supports that best fit their goals, needs and preferences.
Applied behavior analysis (ABA) is one of several evidence-based options. Experiences with ABA vary, and the quality and fit of any therapy matter. Learn more about ABA and other therapies and supports.
Fundraising and spending
Ninety-one cents of every dollar donated to Autism Speaks supports research, advocacy, programs and services. Since 2023, we have earned a four-star rating from Charity Navigator, including a 100% rating in Accountability and Finance.
Since our founding, our programs, resources and advocacy have reached more than 28.5 million autistic people and their families. Learn more about our fundraising and spending.
The puzzle piece
The puzzle piece matters to many people in our community. Autistic people, caregivers, educators and other allies have told us it represents their connection to a movement that has been part of their lives for years. We also know that others feel differently about the symbol. While no single symbol can fully reflect experiences as personal and varied as those within the autism community, our updated logo, with its spectrum of colors, is intended to recognize that range of perspectives and experiences.
What comes next
In 2023, our CEO Keith Wargo shared his perspective on the organization’s journey. Read his letter here.
Consider the facts
Help us stop the spread of misinformation. Share this Autism Speaks flyer on social media to show your support.
