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The Autism Care Network works to expand access to autism diagnosis in Canada… becoming increasingly difficult to keep up with the need for autism assessment. We’re fortunate to work with a wonderful group of community pediatricians who are engaged with lots of autistic kids, so we saw an opportunity for them to take on an advanced practice role in autism diagnosis. We began to work on developing the optimal training approach to support this group and came up with a three-step educational process. We’ve done the training three times now and we’re … child communicates, expresses themselves and plays. We also shared information about community resources, how the different supports and services are funded, and how families navigate services. The second phase was mentored assessments in the …
Want to make a difference? An autism advocate shares her tips… the tide for countless Hispanic families. Autismo en mi Vida, her pioneering non-profit, is not just offering bilingual support; it's revolutionizing the way Spanish-speaking families perceive and tackle autism. And with the platform of the … insights for families eager to ignite change in their communities. Have questions? Contact our Autism Response Team for support in Spanish (1-888-772-9050, ayuda@autismspeaks.org ) and English (1-888-288-4762, help@autismspeaks.org ) You’ve … need? Eight years ago, I formed Autismo en mi Vida with four parents I met in my son’s therapy office. It was a very small group and we just wanted to find people that we could talk to—somebody who could understand what we were going through, and …
Meet Malachi… is now preparing to graduate high school this spring and take on the next phase of his life. With the help of a rock-solid support team of therapists and teachers, and his mom Nonnie, helping to navigate his autism journey, Malachi is thriving. … potential – even if it meant battling discrimination and racism. “At first, Malachi did not have access to the services and support he needed. The biggest hurdle in the early years was insurance paying for occupational, physical and speech … was getting through to the public school district. To them, my son was just another child of color who would end up in a group home. “We eventually left that school district as soon as possible and ended up in a different area of the city, and …
Meet Martha… When Martha’s son, Josh, was growing up, Martha faced many challenges finding him the services and supports he needed to overcome his speech delay and behavioral challenges. Now, at age 21, Josh has grown into a bright, … graduation, he went off to a neurodiverse college for a year. That was incredibly stressful for him—they didn’t have the supports they purported to have for him. Then the pandemic happened, so he came home and did some online courses. Now, we’re … strengths and to support them to follow their dreams. Try to seek out support wherever you can, whether it’s in a support group, friends or family. Listen to your heart. If you feel like a situation isn’t working, don’t be afraid to change. The …
Down Syndrome and Autism Spectrum Disorder (DS-ASD)… lead to a better understanding of your child’s behavior and give you access to critical autism resources, interventions and support that have been shown to improve outcomes. A formal diagnosis could: A formal diagnosis can legitimize a family’s concerns about their loved one’s development and open the door to greater community and support. Help parents and family members better understand, support and guide their loved one Explain why your loved one is … 2nd Edition, 2024  (Froehlke and Sattel) Professionals Recommendations to Providers Handout Down Syndrome Medical Interest Group USA (DSMIG-USA) Association of University Centers on Disabilities   AAP Guidelines National List of Down Syndrome …
Meet Rebekah F.… looking for new ways to bring the best out of her students. She tailors lesson plans to highlight their strengths and support their weaknesses and pulls from personal experiences that have provided her with the type of insight many teachers … advice from books and informational packets from the pediatrician, Rebekah’s parents would eventually help her obtain the support she needed to get on track to reaching her full potential, but it was a long, winding journey filled with many ups … me realize at 20 years old that I could do better too. I watched Star Trek every night and later came to join a Star Trek group where I found people that I was able to talk to and get better at my social skills. Because it took me so long to be …
Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …
One family’s story of navigating their son’s Down syndrome/autism dual diagnosis … also made Jake eligible for additional services, such as the state autism waiver, which provides him with community supports. The diagnosis also helped family members and school- and community-based providers to better understand the reason … It was also through the organization that I learned about and subsequently joined the Down Syndrome Medical Interest Group (DSMIG) DS-ASD committee, which provides expertise to healthcare professionals who work with individuals with Down …
Karl Wittig, a retired electronics engineer, reflects on his late diagnosis and career journey… spectrum disorder. His diagnosis gave him a deeper understanding of his differences and allowed him to find a tight-knit support group of other autistic adults. In this Q&A, Karl talks about his journey to an autism diagnosis and his three secrets to … I had finally nailed it. After my diagnosis, I became very engaged in the autistic communities. I started going to support meetings, which I’ve been going to and facilitating ever since. I’m part of an organization now called Aspies for …
Meet Jack M.… with autism at 18 months, Alison and her husband, Ryan, knew they not only needed to rely on one another for moral support, but they would need a trusted source of information and a welcoming community to lean during this journey into … and you really can feel alone. Even if you don't take all the advice that you see online, even if you don't connect with a support group right away, knowing they are out there is really comforting.   How did you and your partner process Jack’s autism …