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Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …

Respite Care… services can be available to families through provider agencies with trained staff or through a more informal network of support.  Find more helpful information about respite models as well as a respite locator from the National Respite Network … to families. The RAISE Family Caregivers Act , signed into law in January 2018, will create a national strategy for supporting caregivers. Respite options for family caregivers will be one piece of the considered strategy and solution. How … role in managing the specific behaviors of the individual with autism. How will the respite worker support the person in a group setting? You may want a worker to accompany your family member to a social group, or an afterschool program. The …

Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …

Things to Look For in Your Child's Team… quite complex, so it is helpful to take a broad approach when evaluating concerns, and deciding how to provide appropriate support. In order to meet their various needs, many people with autism, especially those with challenging behaviors, need a … have you worked collaboratively in the past? “I have to say, we were lucky enough from the beginning to have assembled a group of fine people who had the very best intentions of helping my son Eli. But a few months into his preschool year, after … the provider’s experience by asking at his office, or by connecting with school or agency staff, other parents, or local support groups for suggestions and recommendations. What is your experience in working with individuals with autism? This …

Autism Speaks opens applications for Local Impact Grants… enhancing their lives today and accelerating a spectrum of solutions for tomorrow. Autism Speaks’ Local Impact Grants support a variety of programs, including: Education and training programs for autistic individuals Recreation, athletic and … services, including vocational training, life skills, residential services and others Assistance for sensory equipment and supportive technology Summer camp scholarships for financially disadvantaged people with autism Since 2013, Autism Speaks … therapists and peers. Timeline:   April 15:  Application opens   May 16:  Application closes   May 23 – June 17:  A group of independent evaluators from across the country reviews and scores applications  June 27 – July 8:  Review …

Autism Speaks national board member Dr. Tom Frazier appointed to federal autism committee… has been appointed as one of two new members of the Interagency Autism Coordinating Committee ( IACC ), an advisory group on federal autism activities. He will serve alongside other public stakeholders as well as federal committee members … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people across the spectrum and of all ages,” said Dr. Frazier. “I look forward to working to ensure that …

Free Sensory Friendly Holiday Performance… for Allegro that plays off all the popular reality baking shows that we all know and love. Our Allegro Players drama group are the main characters that take us through the story while the dance performances support the story through song and movement! The sensory friendly showcase modifications will include: Lower sound level in …

Tennessee Autism Insurance Reform Update… (UHC) and Cigna have voluntarily added coverage for ABA in many of their fully insured plans . This means that 93% of large group plans, 84% of small group plans and 63% of individual plans in the fully insured market in Tennessee now cover ABA for autism! If you are not … to your employer to add the benefit. Please refer to Autism Speaks’ Self-Funded Employer Toolkit for tips and materials to support your efforts. If you can get a meeting with your Human Resources Department to discuss, a member of the Autism …

South Florida Executive Leadership Council (ELC)… and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better … Sorondo, Brand and Marketing Consultant Armando Ureña, Senior Partner, Managing Director at Ureña Wealth Management Group, Snowden Lane Partners Milton Vescovacci* , Shareholder at Gunster **Autism Speaks South Florida Area ELC Chair * …

Meet Malachi… is now preparing to graduate high school this spring and take on the next phase of his life. With the help of a rock-solid support team of therapists and teachers, and his mom Nonnie, helping to navigate his autism journey, Malachi is thriving. … potential – even if it meant battling discrimination and racism. “At first, Malachi did not have access to the services and support he needed. The biggest hurdle in the early years was insurance paying for occupational, physical and speech … was getting through to the public school district. To them, my son was just another child of color who would end up in a group home. “We eventually left that school district as soon as possible and ended up in a different area of the city, and …