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Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Social Skills and Autism… by the idea of new experiences. Building up social skills with practice can help enhance participation in the community and support outcomes like happiness and friendships. We have compiled social skills tips and information from experts, teachers, … school, and in the community. A special education teacher, speech pathologist, or other clinician may lead a “social skills group” that combines direct, explicit instruction with opportunities to practice and generalize these skills in more natural …
Meet Chade` K.… provided her with an overwhelming sense of relief. With the help of her neurotypical husband, Oliver, and various other support systems she discovered through her work as an avid self-advocate, Chade` is thriving in all facets of her life: She … with autism and helps to build relationships between constituents and legislators at the federal level.  This diverse group of advocates includes nearly 345 volunteers from 46 states and the District of Columbia .  Learn more about Chade` in … awareness?   To bring people on the spectrum out of shadows and make representatives of their state aware of the need to support autism. In my city, representatives were not aware of the need for the autism community. Through this program, we …
Tips to create inclusive sports and recreation activities… shared interests. One option is through high-quality adaptive programs – those designed for people with disabilities in a supportive environment, from the Special Olympics to local therapeutic horseback riding lessons to school LEGO clubs. Since … individuals with and without disabilities participate together. Some activities and programs are already designed with the support needs of people with disabilities in mind. (Think: online video gaming.) But what happens when they are not? Here we … online within your county or state can open doors. One of the wonderful things about technology is there are virtual groups based on shared interest open to people across the world. These can be ideal if you feel burned out in general or if …
Meet Kim M. … seventeen months old, she felt alone, overwhelmed, and terrified.  When the autism diagnosis came, she gave her son all the support she could to give him the best chance at an independent life.  By the age of 6, Kim says, “his father and I knew … his own. Despite all his progress, he would need 24/7 supervision until the day he died.”   She wanted to create a loving, supportive, safe forever home for her boy. “It has become the driving force of my life,” she says.   Throughout the years within this community, she has made many friends with parents who also have profoundly autistic kids. Within this group, the idea for HomeLife21 was born.   The friends' group came up with the idea to create their version of a group home …
Why a mother-daughter running duo teamed up for Autism Speaks… Christel, Iowa Wesleyan ’88, decided to check out different race options online. She saw that through Disney you can run in support of various charities, including Autism Speaks. Christel and her daughter Samantha, Iowa Wesleyan ’14, decided to … signed up for the races six months in advance and began training 16 weeks before the race. “Everyone has so many different groups and causes to support, so it was hard for me to ask people to give to another cause. Putting myself out there on social media and asking …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
Respite Care… services can be available to families through provider agencies with trained staff or through a more informal network of support.  Find more helpful information about respite models as well as a respite locator from the National Respite Network … to families. The RAISE Family Caregivers Act , signed into law in January 2018, will create a national strategy for supporting caregivers. Respite options for family caregivers will be one piece of the considered strategy and solution. How … role in managing the specific behaviors of the individual with autism. How will the respite worker support the person in a group setting? You may want a worker to accompany your family member to a social group, or an afterschool program. The …
Autism Speaks opens applications for Local Impact Grants… enhancing their lives today and accelerating a spectrum of solutions for tomorrow. Autism Speaks’ Local Impact Grants support a variety of programs, including: Education and training programs for autistic individuals Recreation, athletic and … services, including vocational training, life skills, residential services and others Assistance for sensory equipment and supportive technology Summer camp scholarships for financially disadvantaged people with autism Since 2013, Autism Speaks … therapists and peers. Timeline:   April 15:  Application opens   May 16:  Application closes   May 23 – June 17:  A group of independent evaluators from across the country reviews and scores applications  June 27 – July 8:  Review …
Autism Speaks national board member Dr. Tom Frazier appointed to federal autism committee… has been appointed as one of two new members of the Interagency Autism Coordinating Committee ( IACC ), an advisory group on federal autism activities. He will serve alongside other public stakeholders as well as federal committee members … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people across the spectrum and of all ages,” said Dr. Frazier. “I look forward to working to ensure that …