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Meet Martha… When Martha’s son, Josh, was growing up, Martha faced many challenges finding him the services and supports he needed to overcome his speech delay and behavioral challenges. Now, at age 21, Josh has grown into a bright, … graduation, he went off to a neurodiverse college for a year. That was incredibly stressful for him—they didn’t have the supports they purported to have for him. Then the pandemic happened, so he came home and did some online courses. Now, we’re … strengths and to support them to follow their dreams. Try to seek out support wherever you can, whether it’s in a support group, friends or family. Listen to your heart. If you feel like a situation isn’t working, don’t be afraid to change. The …
Meet Rebekah F.… looking for new ways to bring the best out of her students. She tailors lesson plans to highlight their strengths and support their weaknesses and pulls from personal experiences that have provided her with the type of insight many teachers … advice from books and informational packets from the pediatrician, Rebekah’s parents would eventually help her obtain the support she needed to get on track to reaching her full potential, but it was a long, winding journey filled with many ups … me realize at 20 years old that I could do better too. I watched Star Trek every night and later came to join a Star Trek group where I found people that I was able to talk to and get better at my social skills. Because it took me so long to be …
Down Syndrome and Autism Spectrum Disorder (DS-ASD)… lead to a better understanding of your child’s behavior and give you access to critical autism resources, interventions and support that have been shown to improve outcomes. A formal diagnosis could: A formal diagnosis can legitimize a family’s concerns about their loved one’s development and open the door to greater community and support. Help parents and family members better understand, support and guide their loved one Explain why your loved one is … 2nd Edition, 2024  (Froehlke and Sattel) Professionals Recommendations to Providers Handout Down Syndrome Medical Interest Group USA (DSMIG-USA) Association of University Centers on Disabilities   AAP Guidelines National List of Down Syndrome …
Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …
Looking back at my son's diagnosis 12 years later… son or daughter needs you to be upright and breathing. Look  for parents who have been there, done that. Whether it’s a support group or a friend of a friend, look for support. Better yet, look to an individual with autism. Who better to educate you about autism? Find  your person. You will …
My story of being diagnosed with autism late… very clear to me. Even though I liked to socialize and had some friends, I started to feel isolated when kids began to form groups and I got left out. So I decided that I wasn’t going to let that happen again in high school (age 12), and started … weirdo, I actually belonged to a group of people that were just different. It gave me clarity, belonging, peace of mind and support. Obviously I had my times while struggling with the question of what Asperger’s meant to me, and if it defined me, especially when I decided to work fulltime as a model. Would I really be able to travel the world, without my support system at home and without any sense of stability? But I know now that even with a disorder, you’re able to learn, …
Meet Miles W.… showing signs of delays, my initial thoughts were of worry and fear. At the time, I wasn’t sure what I should be doing to support him, but I prayed a lot and asked the Lord to order my steps. I sought out speech and group speech therapies, as well as occupational therapy in school. Outside of school, I enrolled Miles in Tae Kwon Do, … be a greater focus on transition services for teens and young adults who have aged out of educational programs or community supports. Organizations like Autism Speaks need to continue to build relationships with companies to provide employment …
Study: Eye Contact Declines Early in Babies Who Later Develop Autism… with autism. The researchers tested each infant 10 times between 2 and 24 months. Initial levels of eye contact for both groups were similar. But infants who did not develop autism increased their eye contact over time, while eye contact … steadily declined among the 13 infants later diagnosed with autism. (Twelve of the 13 were from the high-risk baby siblings group.) In addition, those infants whose levels of eye contact diminished most rapidly were the most disabled by symptoms of … In fact, earlier eye-gaze studies done without eye-tracking technology failed to capture the pattern. The new results also support the strong role that genetic and prenatal factors play in the development of ASD, Dr. Wang adds. “Some people have …
One family’s story of navigating their son’s Down syndrome/autism dual diagnosis … also made Jake eligible for additional services, such as the state autism waiver, which provides him with community supports. The diagnosis also helped family members and school- and community-based providers to better understand the reason … It was also through the organization that I learned about and subsequently joined the Down Syndrome Medical Interest Group (DSMIG) DS-ASD committee, which provides expertise to healthcare professionals who work with individuals with Down …
Karl Wittig, a retired electronics engineer, reflects on his late diagnosis and career journey… spectrum disorder. His diagnosis gave him a deeper understanding of his differences and allowed him to find a tight-knit support group of other autistic adults. In this Q&A, Karl talks about his journey to an autism diagnosis and his three secrets to … I had finally nailed it. After my diagnosis, I became very engaged in the autistic communities. I started going to support meetings, which I’ve been going to and facilitating ever since. I’m part of an organization now called Aspies for …