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COVID-19 survey reveals widespread challenges for autism community and wider disparities for minority communities … community are struggling even more, particularly with basic needs.”  Minority respondents, who made up about half of the group surveyed, reported more struggles with a variety of needs related to the pandemic, basic needs, daily routines and education.  The largest disparities were in the areas of food insecurity and receiving distance learning supports, with nonwhite respondents experiencing twice the food insecurity of white respondents and twice as likely to not receive any distance learning supports. Food insecurity was measured as food for the household having run out and families not having enough money to buy …
Expert Q&A: Explaining the conditions that accompany autism… In this Q&A, Amanda Bennett Palladino, MD, MPH, shares some of the most common conditions that accompany autism and offers support and resources to those coping with co-occurring conditions. Amanda Bennett Palladino is a developmental and … their care team. I frequently refer families to the Autism Speaks website to access the free Tool Kits that are designed to support families in addressing some of the most common co-occurring conditions. Families can find resources related to … caring for people with autism. Find local experts and/or advocates, participate in a research study or community advocacy group, find an online community if you can’t find a local one. The resources are there, in one form or another, if you just …
CDC estimate on autism prevalence increases by nearly 10 percent, to 1 in 54 children in the U.S. … a gap remains in prevalence among Hispanic children, indicating a need to expand screening and intervention among this group. Further, black and Hispanic children identified with autism received evaluations at older ages than similar white … guidance of the Interagency Autism Coordinating Committee (IACC), and to advance policies that better provide services and supports for early intervention, education, transition to adulthood, employment and community living.   The CDC report was … of people with autism. To join the conversation, find @autismspeaks on Facebook, Instagram and LinkedIn. For personalized support and questions, contact the Autism Response Team at 1-888-AUTISM2, en Español at 1-888-772-9050 or by email at  …
Meet Miles W.… showing signs of delays, my initial thoughts were of worry and fear. At the time, I wasn’t sure what I should be doing to support him, but I prayed a lot and asked the Lord to order my steps. I sought out speech and group speech therapies, as well as occupational therapy in school. Outside of school, I enrolled Miles in Tae Kwon Do, … be a greater focus on transition services for teens and young adults who have aged out of educational programs or community supports. Organizations like Autism Speaks need to continue to build relationships with companies to provide employment …
Meet Bin F.… to educate others about autism and inform policymakers. He has particularly made an impact in representing, leading and supporting Asian communities. In this Q&A, Bin shares what Asian American & Pacific Islander (AAPI) Heritage Month means to … family business, because my son Vincent is on the spectrum. Vincent is always our top priority. All of us come together to support him. I started to share our stories about 20 years ago after we knew Vincent has autism. First, it was just a note … advice? I remember the words from the movie “The field of dreams”: if you build it, he will come. When I started a parents’ group, started book clubs, started with social media stories, started with website, started with NPO, I always remember this …
One family’s story of navigating their son’s Down syndrome/autism dual diagnosis … also made Jake eligible for additional services, such as the state autism waiver, which provides him with community supports. The diagnosis also helped family members and school- and community-based providers to better understand the reason … It was also through the organization that I learned about and subsequently joined the Down Syndrome Medical Interest Group (DSMIG) DS-ASD committee, which provides expertise to healthcare professionals who work with individuals with Down …
Karl Wittig, a retired electronics engineer, reflects on his late diagnosis and career journey… spectrum disorder. His diagnosis gave him a deeper understanding of his differences and allowed him to find a tight-knit support group of other autistic adults. In this Q&A, Karl talks about his journey to an autism diagnosis and his three secrets to … I had finally nailed it. After my diagnosis, I became very engaged in the autistic communities. I started going to support meetings, which I’ve been going to and facilitating ever since. I’m part of an organization now called Aspies for …
Autism Speaks awards over $550,000 for autism research… more effective, personalized care in the years ahead,” said Autism Speaks Chief Science Officer Andy Shih. “We are proud to support a promising group of young scientists who are propelling the field of autism research forward in new directions.”  Grant applications …
Advocacy Perspective: During Black History Month, A Call To Action To Advance Health Equity … adverse health challenges.   Autism Speaks was a frequent flyer in my office on the Hill. I often met with a very diverse group of AS ambassadors. They not only advocated for the autistic community but for health equity generally. I saw as they … services. These data indicate that too many Black autistic children are going undiagnosed - without the services and support they need and deserve.  Our approach to change this is through community-based services that empower those who are … with autism and developmental disabilities or delays how to use their everyday routines and home activities to best support their children’s communication and behavioral health needs. Our Public Health Team’s work – which has impacted lives …
Expert Q&A: Dr. Ryan Adams shares tips and resources to end bullying… in the UC Department of Pediatrics at Cincinnati Children’s Hospital Medical Center, a member site of the Autism Speaks-supported Autism Care Network . His research focuses on adolescents, peer victimization, bullying and depressive symptoms.   … some examples of strategies you offer in the guides?  We know the most effective way to stop bullying is giving the larger group of bystanders the tools they need to recognize when it’s happening and get involved. A lot of times, people get away … with bullying by saying they were kidding, so we teach kids that doesn’t matter. Then, we give them different strategies to support the person being bullied. For example, the easiest thing to do if you witness bullying in school is not to laugh. …