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What my son's routines helped me understand about being an autism dad… is in General Ed Kindergarten. He’s won academic awards! He doesn’t need weekly speech therapy anymore. He’s graduated to group ABA. He loves reading and math and playing Monopoly (he has nine different versions). He has friends! The greatest … fail, or get hurt, or be ridiculed or misunderstood. Everything an autism parent knows will come with time no matter the support and love we provide every second of the day. As he eyes 1st grade over the horizon, I continue to ask myself how …
10 ways a parent can help their autistic child… stead when I’m no longer here to take him places. Yes, I’m always planning. If you haven’t already done so, join a parent group and/or your school district’s special education PTA. You will make invaluable connections at both. Try to find parents … to people not in the “tribe” about what raising an autistic child is really like. It’s time to tell them and ask for the support you need, even if it’s just an ear to listen. My husband and I kept too much to ourselves, and if I could go back in …
Expert Q&A: Dr. Ryan Adams shares tips and resources to end bullying… in the UC Department of Pediatrics at Cincinnati Children’s Hospital Medical Center, a member site of the Autism Speaks-supported Autism Care Network . His research focuses on adolescents, peer victimization, bullying and depressive symptoms.   … some examples of strategies you offer in the guides?  We know the most effective way to stop bullying is giving the larger group of bystanders the tools they need to recognize when it’s happening and get involved. A lot of times, people get away … with bullying by saying they were kidding, so we teach kids that doesn’t matter. Then, we give them different strategies to support the person being bullied. For example, the easiest thing to do if you witness bullying in school is not to laugh. …
How my family faces roadblocks… got lots of individual attention, speech and occupational therapy.  When it came time to enter Kindergarten, his teacher supported him going into a regular classroom with an aide, which is what my daughter wanted as well. The principal was on … want either of these options (a roadblock), so her team (the speech and occupational therapist, plus his pre-K teacher) regrouped and came up with an IEP plan that had lots of supports, including preferential seating, a behavior modification plan, options to test in a small group setting, etc. At …
Carrying a heavy load with back-to-school choices? … can be especially challenging for students on the autism spectrum, who may receive critical, in-person services and supports through school.   Decision-making by officials will vary by region and even by school, and many districts … system for assigned seating to maintain distance. Your child may be staying in the same classroom and seeing a smaller group of classmates than before.  Emphasize the positives to all these changes to help limit the fear that might be …
Catching up with Taniya H. … nature of the game on the court, but off the court she was adjusting to life in a new city with new coaches and a new group of teammates.   Today, as one of the senior leaders on the team, Taniya’s tenacious work ethic and passion for the … who she is and what she is capable of in this Q&A.  How important has it been to your personal growth to have found a supportive environment at the University at Albany and a head coach that understands autism and has the connection of her … and can accomplish your goals if you work hard. You can overcome obstacles and be whatever you want to be with the right support system and work ethic.   I take pride in being a representative for the autism community. I feel like as a D-1 …
Spanish resources help bilingual families in the autism community overcome language barriers … appointment, Berlina Felipe did her research. She had a year during that wait, reading about what to expect and how to plan supports for her son, Alex. “When he did get diagnosed at age 4, even though I was already prepared, it was still hard,” … Both of Jair’s grandmothers, who took care of him when he was young, attended the Spanish classes as well to learn how to support him. “Years later, my mom told us she is so glad that we got all the early intervention,” Gaby said. “And that we … their classes and resources in Spanish. Based on participant feedback, they also sometimes separate dads and moms into two groups to encourage each group to talk more openly. Alex’s family made sure to learn from his providers and school contacts …
Summer is here! Four tips for a smooth transition… grocery shopping and THEN we get to go to the park!”. For information on visual schedules, check out our Autism and Visual Supports Guide . Find Respite Care/Increase Therapy Time Because of the down time in his schedule and with both parents … members or friends to give you a break or to provide care during work hours. Talk to your other autism moms at a local support group to see if you can organize some play dates at local parks, pools or homes. Reach out to local autism organizations in …
Home and Community Based Services (HCBS) Waivers… states to accomplish certain goals, such as reducing costs, expanding coverage, or improving care for certain target groups. Through these waivers, states can provide services that wouldn’t usually be covered by Medicaid. For instance, … states, there are substantial waiting lists to receive those waiver services. Medicaid HCBS fund the majority of lifelong supports that people with autism and their families rely on throughout their life spans to live, remain safe and participate … services individuals need to live in the community. This may include case management, transportation, home care or direct support, respite, adult day services, employment supports, assistive technology, respite, and therapies (speech, …
Cheryl Chafos honors her late son, Zachary, by advocating for autism training among healthcare professionals… His younger brothers were now so scared they often locked themselves in the bathroom. Cheryl and Tim were looking into group homes but none would take him while he exhibited aggressive behavior. But they couldn’t handle him on their own … away.  For 19 years Cheryl spent countless hours advocating on Zach’s behalf with school staffs, doctors, therapists, support agencies and others-as well as driving to therapies, consultations and events. She had spent the last 59 days up … is needed to better recognize and address mental health issues in those like Zach with challenging behaviors and high support needs. Research and clinical programs supported by Autism CARES Act could help develop more personalized treatment …