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Advocacy Perspective: During Black History Month, A Call To Action To Advance Health Equity … adverse health challenges.   Autism Speaks was a frequent flyer in my office on the Hill. I often met with a very diverse group of AS ambassadors. They not only advocated for the autistic community but for health equity generally. I saw as they … services. These data indicate that too many Black autistic children are going undiagnosed - without the services and support they need and deserve.  Our approach to change this is through community-based services that empower those who are … with autism and developmental disabilities or delays how to use their everyday routines and home activities to best support their children’s communication and behavioral health needs. Our Public Health Team’s work – which has impacted lives …
Assembling Your Team After a Diagnosis… It often takes a team of people to help support a person with autism. Your child’s team will consist of many different members. They will help you to address all … about your child’s treatment, education, recreation and health. Below is some helpful information on how to assemble this group of professionals. Medical team Your child should be supported by a pediatrician who understands developmental issues and who will serve as your child’s primary care provider. …
What my son's routines helped me understand about being an autism dad… is in General Ed Kindergarten. He’s won academic awards! He doesn’t need weekly speech therapy anymore. He’s graduated to group ABA. He loves reading and math and playing Monopoly (he has nine different versions). He has friends! The greatest … fail, or get hurt, or be ridiculed or misunderstood. Everything an autism parent knows will come with time no matter the support and love we provide every second of the day. As he eyes 1st grade over the horizon, I continue to ask myself how …
10 ways a parent can help their autistic child… stead when I’m no longer here to take him places. Yes, I’m always planning. If you haven’t already done so, join a parent group and/or your school district’s special education PTA. You will make invaluable connections at both. Try to find parents … to people not in the “tribe” about what raising an autistic child is really like. It’s time to tell them and ask for the support you need, even if it’s just an ear to listen. My husband and I kept too much to ourselves, and if I could go back in …
Expert Q&A: Dr. Ryan Adams shares tips and resources to end bullying… in the UC Department of Pediatrics at Cincinnati Children’s Hospital Medical Center, a member site of the Autism Speaks-supported Autism Care Network . His research focuses on adolescents, peer victimization, bullying and depressive symptoms.   … some examples of strategies you offer in the guides?  We know the most effective way to stop bullying is giving the larger group of bystanders the tools they need to recognize when it’s happening and get involved. A lot of times, people get away … with bullying by saying they were kidding, so we teach kids that doesn’t matter. Then, we give them different strategies to support the person being bullied. For example, the easiest thing to do if you witness bullying in school is not to laugh. …
How my family faces roadblocks… got lots of individual attention, speech and occupational therapy.  When it came time to enter Kindergarten, his teacher supported him going into a regular classroom with an aide, which is what my daughter wanted as well. The principal was on … want either of these options (a roadblock), so her team (the speech and occupational therapist, plus his pre-K teacher) regrouped and came up with an IEP plan that had lots of supports, including preferential seating, a behavior modification plan, options to test in a small group setting, etc. At …
Meet Tyler H. … does he live on campus in a dorm suite with two other students, he’s thriving in all of his classes thanks to the extra support he receives as a member of the SUCCEED Program, a post-secondary program for students with intellectual and … Tyler’s parents credit their son’s amazing strides into adulthood to crucial early intervention services, a caring and supportive group of family members and kindhearted friends who always stood by his side and his strong will to make the most of his …
Sweet Treats… Have Dreams is an Evanston/Park Ridge autism resource agency. Since 2013, ilovesweets has partnered with Have Dreams to support their workplace training program for young adults with autism. At ilovesweets and other area businesses, … business, workplace, and marketing are inspired by individuals with autism and their unique strengths and abilities. Your support allows us to grow and share our gourmet popcorn creations and our caring mission to benefit those with autism. … Spectrum Bakes Spectrum Bakes is a social enterprise dedicated to providing jobs to young adults with autism. A group that faces a 92% unemployment rate. We bake all of our products in small batches, we ensure mouth-watering tastes & a …
Spanish resources help bilingual families in the autism community overcome language barriers … appointment, Berlina Felipe did her research. She had a year during that wait, reading about what to expect and how to plan supports for her son, Alex. “When he did get diagnosed at age 4, even though I was already prepared, it was still hard,” … Both of Jair’s grandmothers, who took care of him when he was young, attended the Spanish classes as well to learn how to support him. “Years later, my mom told us she is so glad that we got all the early intervention,” Gaby said. “And that we … their classes and resources in Spanish. Based on participant feedback, they also sometimes separate dads and moms into two groups to encourage each group to talk more openly. Alex’s family made sure to learn from his providers and school contacts …
Pediatrics journal dedicates supplement publication to autism studies … for Children and Youth With Autism Spectrum Disorder,” include both provider guidance and new findings based on network-supported research studies. Some highlights of the research findings include: 93 percent of families of children with autism … therapies, and few of those are receiving the recommended amount. Psychotropic medications are also being used in this age group. Certain racial, ethnic and socioeconomic groups experience barriers to getting appropriate autism care and report … obstacles to getting appropriate autism care. Shared decision-making, provider follow-up on service navigation and provider support on weighing service options are potential provider strategies to ensure follow up on referrals for needed services. …