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luck2tuck – hammer down

The author of this post is Jess, who can be found at Diary of a MomThere she writes about life with her husband Luau* and their beautiful daughters – nine and-a-half year-old Katie*, an utterly fabulous typically a-typical ten-year-old, and eight-year-old, Brooke*, a loving, talented, hilarious second grader who has autism.

Act as if what you do makes a difference.  It does.  

~William James

I am only one, but I am one.  I cannot do everything, but I can do something.  And I will not let what I cannot do interfere with what I can do.  
~ Edward Everett Hale

Have you ever met someone and felt like you’d just been introduced to an old friend? I had the pleasure of meeting Jennifer yesterday .. and she’s beyond awesome. More to come on this, but if you’re not yet following her family’s story .. well, do. Luck2Tuck
~ Diary’s Facebook status, August 12th, 2012

The Gowan family is living through a nightmare. But led by their son, Tucker, they are traveling the road with honestly, grace and humor — and an inner strength that they never knew they had. What follows is their story, as told by Jennifer.

It had been a beautiful day.  For the first time in a long time I felt actually excited and hopeful. We had just finished a 3 hour MAPS/Future Plans meeting at the high school for our son Tristan, a 10th grader with Aspergers. All of his teachers and family were in attendance. We had discussed at great lengths Tristan’s strengths and weaknesses, his goals in life, and what his hopes, fears and dreams were. All of this put into place to help Tristan plan for the future and help him to figure out what he wants to do after high school and beyond. It was the first time ever that I didn’t feel like the future was so scary for him. We had a plan. We had a team of people who loved and supported him.  The world was filled with possibilities. WE could do this…HE could do this. I felt elated.

However, during that meeting there was one thing that took me a bit off guard.  I still to this day have NO idea why Tristan even said it.   When we asked him about his fears, Tristan sat up straight, looked at all of us in the room and said, “My biggest fear in the world is that someone I love will get cancer.”

Now, blurting out doom and gloom comments wasn’t so unusual for my son. He tends to worry….A LOT. So I was used to this; but for some reason that particular comment made me shift a little more uneasily in my chair. After all, I had lost my mother to cancer. I certainly wasn’t going to tell Tristan that it couldn’t happen. I knew full well you could never make a promise like that to your child. Because, what if?  God forbid, what if? So instead I assured him  that although that is a very scary thought, I don’t want you to worry about things like that. I want you to enjoy life and be happy. Take each day as it comes. Stop and smell the roses. Tristan trusts my face more than my words, and if my face is smiling at him and sending him love and positive emotions, he will trust it.  He seemed content with my answer.

How little I realized that fear of Tristan’s was about to come true.

Read the entire story here.

The Autism Speaks blog features opinions from people throughout the autism community. Each blog represents the point of view of the author and does not necessarily reflect Autism Speaks' beliefs or point of view.