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Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
Autism Speaks national board member Dr. Tom Frazier appointed to federal autism committee… has been appointed as one of two new members of the Interagency Autism Coordinating Committee ( IACC ), an advisory group on federal autism activities. He will serve alongside other public stakeholders as well as federal committee members … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people across the spectrum and of all ages,” said Dr. Frazier. “I look forward to working to ensure that …
Free Sensory Friendly Holiday Performance… for Allegro that plays off all the popular reality baking shows that we all know and love. Our Allegro Players drama group are the main characters that take us through the story while the dance performances support the story through song and movement! The sensory friendly showcase modifications will include: Lower sound level in …
Transition to college and beyond: A personal story… to emphasize my strengths. It made me more confident to make really meaningful goals that I could achieve with the right supports. My goal was to go to college. The clear best way to do that was to get my GED since my education was not … who also taught a GED class. She led me to taking her class. I also had a communication assistant who attended with me and supported me for the next seven years. Anxiety was tough, but they reassured me. My teacher didn’t judge me on my sensory … me make very deliberate decisions that are well thought through, and I can talk about my feelings. I also attend a social group. Learning about making friends is important to me. The social group keeps people connected. My therapists have been …
Tennessee Autism Insurance Reform Update… (UHC) and Cigna have voluntarily added coverage for ABA in many of their fully insured plans . This means that 93% of large group plans, 84% of small group plans and 63% of individual plans in the fully insured market in Tennessee now cover ABA for autism! If you are not … to your employer to add the benefit. Please refer to Autism Speaks’ Self-Funded Employer Toolkit for tips and materials to support your efforts. If you can get a meeting with your Human Resources Department to discuss, a member of the Autism …
2022 Advocacy Highlights… that ensure billions of dollars are dedicated at the federal and state levels to improving and expanding the services, supports and opportunities available to autistic people. Today, we celebrate the policy milestones and accomplishments that … appropriate for autistic children and young adults enrolled in Medicaid. Oklahoma will require state-regulated small group and individual health insurance plans to provide meaningful coverage of autism services beginning in 2023 thanks to …
Autism & Disparities: Addressing the Needs of Underserved Communities… Asian-American, and Native American communities within the United States. Recognizing the diversity that exists within groups, the panelists did not speak on behalf of all members of their larger communities. However, their voices provide … of people who are also affected by social and economic disparities associated with belonging to a racial or ethnic minority group. Autism Speaks is committed to addressing these disparities by advocating for passage of the Autism CARES Act of 2019 … as well as by partnering with the Ad Council and Sesame Workshop on a new public awareness campaign . We appreciate the support of advocates like our panelists and congressional legislative champions in providing the vision and opportunity to …
Family in Remote Area Seeks Autism Treatment Guidance… and playing with your child. It will help your child if you all try to be consistent in the way you teach skills. Create a support and advocacy group. Find other parents of children with autism in your area. We’ve watched communities in remote locations around the world develop parent networks to assist and support each other. Your local parent network can also advocate for better services in your region! There is no easy answer …
Autism Speaks commends Tennessee as it becomes 50th state requiring that insurance plans cover autism… On August 1, the Tennessee Department of Commerce and Insurance issued a bulletin requiring all individual, small and large group plans to cover medically necessary care for autism, including applied behavior analysis (ABA). "People with autism and … and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes …
Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …