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Researchers report findings on getting autism treatments into diverse communities … communities. A series of presentations by panelists looked at access to services for different minority and ethnic groups as well as in international communities. “Getting autism care and knowledge into communities means better access for … creative ways that researchers and providers are trying to distribute knowledge so that communities are better equipped to support people with autism where they live.” In Washington, D.C., where 80 percent of the children enrolled in Medicaid are … program for early childhood educators. Following a four-part training series, the educators felt better equipped to support children with autism in their care, but still reported that timely access to full evaluations and treatments …
Research meeting highlights access and intersectional challenges in U.S. and international communities … designed to reduce some of that resource burden.” Early data presented by Wagner from the clinical trial of the TAP tool supported its effectiveness as a diagnostic tool for children who were referred for autism evaluation, but further research was needed to see if the tool would be effective at other sites with more mixed groups of children. After testing the tool with 200 providers from across specialties, from pediatricians to school … are lifted. In a related session, researchers at Children’s Mercy Kansas City presented findings about using telehealth to support caregivers during the pandemic. Located in an area with a range of patients from rural, suburban and urban …
Autism Speaks announces pilot sites for groundbreaking project linking discovery science and clinical research… $6.15M including a leading gift of $3.5M from the Wise Family Foundation of Toronto, Canada. These generous commitments support the $12 million expansion of PATH, the next phase of MSSNG, to include not only whole genome sequence data but also … of the data and findings. These larger datasets increase the ability for researchers to find patterns and connections in groups of very different people. Due to the broad and variable ways each person is affected by autism, when testing … people.” About Autism Care Network A first of its kind learning health system for autism, the Autism Care Network, with support from Autism Speaks is built on more than a decade of work in improving autism care and a family-centered approach to …
Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …
COVID-19 survey reveals widespread challenges for autism community and wider disparities for minority communities … community are struggling even more, particularly with basic needs.” Minority respondents, who made up about half of the group surveyed, reported more struggles with a variety of needs related to the pandemic, basic needs, daily routines and education. The largest disparities were in the areas of food insecurity and receiving distance learning supports, with nonwhite respondents experiencing twice the food insecurity of white respondents and twice as likely to not receive any distance learning supports. Food insecurity was measured as food for the household having run out and families not having enough money to buy …
Expert Q&A: Explaining the conditions that accompany autism… In this Q&A, Amanda Bennett Palladino, MD, MPH, shares some of the most common conditions that accompany autism and offers support and resources to those coping with co-occurring conditions. Amanda Bennett Palladino is a developmental and … their care team. I frequently refer families to the Autism Speaks website to access the free Tool Kits that are designed to support families in addressing some of the most common co-occurring conditions. Families can find resources related to … caring for people with autism. Find local experts and/or advocates, participate in a research study or community advocacy group, find an online community if you can’t find a local one. The resources are there, in one form or another, if you just …
Autism Speaks Names 2017 Weatherstone Predoctoral Fellows… career scientists pursuing autism research. Lady Weatherstone and daughter Cheryl Weatherstone-Vance continue to actively support this fellowship program on a personal level. The 2017 class brings the number of Autism Speaks Weatherstone … and daily living among adolescents affected by autism. Her goal is to guide the development of more-effective programs for supporting a successful transition to adulthood. Read more about Maya Reiter's research project here . Evan Geller Under the … understanding and treatment of anxiety, depression and other mental health problems that commonly occur in this vulnerable group. Read more about Jessica Greenlee's research project here . Elyza Kelly Under the mentorship of Peter Tsai at …
Autism Speaks awards over $550,000 for autism research… more effective, personalized care in the years ahead,” said Autism Speaks Chief Science Officer Andy Shih. “We are proud to support a promising group of young scientists who are propelling the field of autism research forward in new directions.” Grant applications …
Expert Q&A: Dr. Ryan Adams shares tips and resources to end bullying… in the UC Department of Pediatrics at Cincinnati Children’s Hospital Medical Center, a member site of the Autism Speaks-supported Autism Care Network . His research focuses on adolescents, peer victimization, bullying and depressive symptoms. … some examples of strategies you offer in the guides? We know the most effective way to stop bullying is giving the larger group of bystanders the tools they need to recognize when it’s happening and get involved. A lot of times, people get away … with bullying by saying they were kidding, so we teach kids that doesn’t matter. Then, we give them different strategies to support the person being bullied. For example, the easiest thing to do if you witness bullying in school is not to laugh. …
Autism and auditory processing disorder: A follow-up… filtering sounds. In May 2016, Autism Speaks and Royal Arch Masons International announced funding for new fellowships to support research by young investigators to better understand central auditory processing disorders in people with and … sound, is part of one of the core criteria for diagnosing autism. Parent- and self-reports collected in multiple studies support the importance of this criteria. They describe a person with autism as having atypical perception and response to … understanding and remembering spoken information, especially in noisy environments. Past research has tended to focus on group-level analyses of auditory processing (i.e., comparing people with autism to neurotypical people) but has not looked …