Search

Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …

Autism Speaks national board member Dr. Tom Frazier appointed to federal autism committee… has been appointed as one of two new members of the Interagency Autism Coordinating Committee ( IACC ), an advisory group on federal autism activities. He will serve alongside other public stakeholders as well as federal committee members … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people across the spectrum and of all ages,” said Dr. Frazier. “I look forward to working to ensure that …

Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …