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The Hatching Hope Foundation brings advocacy and support to Dallas-Fort Worth families… triplets, was diagnosed with autism in 2012 at age 2.5, she struggled to find much-needed information, services and social supports in her area. This struggle motivated Sabrina to commit her life to helping underserved families in Ft. Worth, Texas … she founded the Hatching Hope Foundation, an organization that provides parent training about autism, individual and family support services, and special education advocacy. In 2019, Keshawn tragically passed away from Osteosarcoma, a rare form of … someone who really understands what it’s like to be a parent living with a child with severe autism. Our Facebook support group, Autism Mocha Moms , has been another great way to connect with parents in the community. The group was created to …
Clinician Guide: Program Development and Best Practices for Treating Severe Behaviors in Autism … of life for autistic people and their families. To improve systems of care for this population, Autism Speaks convened a group of multi-disciplinary experts to develop the Clinician Guide: Program Development and Best Practices for Treating … The goal of this guide is to help providers: Expand their understanding of intense challenging behaviors in autism Support individuals experiencing significant behavior challenges who may harm themselves or those around them Develop …
Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …
Autism in Africa: Transforming care and services for a brighter future… spectrum disorder (ASD) and other developmental disabilities face stigmatization, delayed diagnosis and limited access to support services. In many countries, challenges in service delivery are compounded by humanitarian concerns like armed … meeting of the minds focused on advances in global science, practice and policy. As I sat among this distinguished group ahead of International Day of Persons with Disabilities, I was proud to represent Autism Speaks alongside my … and UNICEF to launch the Global Report on Children with Developmental Disabilities . Developed with technical and financial support from Autism Speaks, this report is a roadmap for advocates and policymakers in underserved countries around the …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Autism Speaks to host Thought Leadership Summit on Challenging Behaviors… Autism Speaks will convene an invited group of researchers, clinicians, autistic adults and other autism community members virtually on Dec. 3 and 4, 2020, to … with social interactions or might not be appropriate for work or school, to behavior challenges that require significant support, such as aggression and self-injury. There are few programs that provide the level of care needed for those with more significant support needs, and families often face obstacles like distance and financial limitations that keep them from accessing them. …
Social skills classes produce lasting benefits for adults with autism… or other caregivers received training on how to coach the participants outside of class. Conversation, humor and more The group classes focused on conversational skills, appropriate use of humor and electronic communication, identifying sources … in the study, the researchers propose. “Our study offers encouraging findings that, through an evidence-based, caregiver-supported intervention, adults with autism can improve in ways that may help them be more successful in these aspects of … exist for young adults on the spectrum. “It’s exciting to see a community-based treatment model using caregiver support to help improve social skills,” comments Kara Reagon, Autism Speaks associate director of dissemination science. …
Autism Speaks executive Val Paradiz appointed to federal autism committee… U.S. Department of Health and Human Services announced today that Valerie Paradiz, Ph.D., vice president of services and supports at Autism Speaks, has been appointed as one of 20 new as well as two returning public members of the Interagency Autism Coordinating Committee (IACC), an advisory group on federal autism activities. Along with federal members of the committee from key agencies and departments serving … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people of all ages,” said Dr. Paradiz. “I look forward to working with other members of the committee to …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …