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Family Advisors: The power and importance of connection… MPA. For many families who care for a loved one with autism spectrum disorder, access to knowledge and resources to support autism is critical. The right supports can enhance a life that is meaningful and productive. For me and my colleague, Liza Krassner, we understand how … of the Autism Speaks Autism Treatment Network /Autism Intervention Research Network on Physical Health (ATN/AIR-P). This group of 12 sites across the U.S. and Canada represent a wide array of autism services, research and clinical programs, …
Advocacy Perspective: During Black History Month, A Call To Action To Advance Health Equity … adverse health challenges. Autism Speaks was a frequent flyer in my office on the Hill. I often met with a very diverse group of AS ambassadors. They not only advocated for the autistic community but for health equity generally. I saw as they … services. These data indicate that too many Black autistic children are going undiagnosed - without the services and support they need and deserve. Our approach to change this is through community-based services that empower those who are … with autism and developmental disabilities or delays how to use their everyday routines and home activities to best support their children’s communication and behavioral health needs. Our Public Health Team’s work – which has impacted lives …
Expert Q&A: Dr. Ryan Adams shares tips and resources to end bullying… in the UC Department of Pediatrics at Cincinnati Children’s Hospital Medical Center, a member site of the Autism Speaks-supported Autism Care Network . His research focuses on adolescents, peer victimization, bullying and depressive symptoms. … some examples of strategies you offer in the guides? We know the most effective way to stop bullying is giving the larger group of bystanders the tools they need to recognize when it’s happening and get involved. A lot of times, people get away … with bullying by saying they were kidding, so we teach kids that doesn’t matter. Then, we give them different strategies to support the person being bullied. For example, the easiest thing to do if you witness bullying in school is not to laugh. …
Catching up with Taniya H. … nature of the game on the court, but off the court she was adjusting to life in a new city with new coaches and a new group of teammates. Today, as one of the senior leaders on the team, Taniya’s tenacious work ethic and passion for the … who she is and what she is capable of in this Q&A. How important has it been to your personal growth to have found a supportive environment at the University at Albany and a head coach that understands autism and has the connection of her … and can accomplish your goals if you work hard. You can overcome obstacles and be whatever you want to be with the right support system and work ethic. I take pride in being a representative for the autism community. I feel like as a D-1 …
Sweet Treats… Have Dreams is an Evanston/Park Ridge autism resource agency. Since 2013, ilovesweets has partnered with Have Dreams to support their workplace training program for young adults with autism. At ilovesweets and other area businesses, … business, workplace, and marketing are inspired by individuals with autism and their unique strengths and abilities. Your support allows us to grow and share our gourmet popcorn creations and our caring mission to benefit those with autism. … Spectrum Bakes Spectrum Bakes is a social enterprise dedicated to providing jobs to young adults with autism. A group that faces a 92% unemployment rate. We bake all of our products in small batches, we ensure mouth-watering tastes & a …
Spanish resources help bilingual families in the autism community overcome language barriers … appointment, Berlina Felipe did her research. She had a year during that wait, reading about what to expect and how to plan supports for her son, Alex. “When he did get diagnosed at age 4, even though I was already prepared, it was still hard,” … Both of Jair’s grandmothers, who took care of him when he was young, attended the Spanish classes as well to learn how to support him. “Years later, my mom told us she is so glad that we got all the early intervention,” Gaby said. “And that we … their classes and resources in Spanish. Based on participant feedback, they also sometimes separate dads and moms into two groups to encourage each group to talk more openly. Alex’s family made sure to learn from his providers and school contacts …
Pediatrics journal dedicates supplement publication to autism studies … for Children and Youth With Autism Spectrum Disorder,” include both provider guidance and new findings based on network-supported research studies. Some highlights of the research findings include: 93 percent of families of children with autism … therapies, and few of those are receiving the recommended amount. Psychotropic medications are also being used in this age group. Certain racial, ethnic and socioeconomic groups experience barriers to getting appropriate autism care and report … obstacles to getting appropriate autism care. Shared decision-making, provider follow-up on service navigation and provider support on weighing service options are potential provider strategies to ensure follow up on referrals for needed services. …
Girls, genes and autism… , at the University of Washington, in Seattle. I want to start by saying "thank you" to the Autism Speaks community for its support of my research. My Weatherstone Fellowship launched my scientific career by helping fund my first big study – into … and I wanted to use a relatively new gene-sequencing technique – called exome sequencing – to sequence all the genes in a group of girls and women on the autism spectrum. [Editor’s note: Standard genetic testing involves the sequencing of only a … disrupted the normal formation of synapses – the vital connections that link brain cells with each other. This finding supported earlier evidence that problems with brain connectivity are a root cause of autism. In addition, we found many …
Home and Community Based Services (HCBS) Waivers… states to accomplish certain goals, such as reducing costs, expanding coverage, or improving care for certain target groups. Through these waivers, states can provide services that wouldn’t usually be covered by Medicaid. For instance, … states, there are substantial waiting lists to receive those waiver services. Medicaid HCBS fund the majority of lifelong supports that people with autism and their families rely on throughout their life spans to live, remain safe and participate … services individuals need to live in the community. This may include case management, transportation, home care or direct support, respite, adult day services, employment supports, assistive technology, respite, and therapies (speech, …
Cheryl Chafos honors her late son, Zachary, by advocating for autism training among healthcare professionals… His younger brothers were now so scared they often locked themselves in the bathroom. Cheryl and Tim were looking into group homes but none would take him while he exhibited aggressive behavior. But they couldn’t handle him on their own … away. For 19 years Cheryl spent countless hours advocating on Zach’s behalf with school staffs, doctors, therapists, support agencies and others-as well as driving to therapies, consultations and events. She had spent the last 59 days up … is needed to better recognize and address mental health issues in those like Zach with challenging behaviors and high support needs. Research and clinical programs supported by Autism CARES Act could help develop more personalized treatment …