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Clinician Guide: Program Development and Best Practices for Treating Severe Behaviors in Autism … of life for autistic people and their families. To improve systems of care for this population, Autism Speaks convened a group of multi-disciplinary experts to develop the Clinician Guide: Program Development and Best Practices for Treating … The goal of this guide is to help providers: Expand their understanding of intense challenging behaviors in autism Support individuals experiencing significant behavior challenges who may harm themselves or those around them Develop …
Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
Autism Speaks national board member Dr. Tom Frazier appointed to federal autism committee… has been appointed as one of two new members of the Interagency Autism Coordinating Committee ( IACC ), an advisory group on federal autism activities. He will serve alongside other public stakeholders as well as federal committee members … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people across the spectrum and of all ages,” said Dr. Frazier. “I look forward to working to ensure that …
Autism Speaks announces pilot sites for groundbreaking project linking discovery science and clinical research… $6.15M including a leading gift of $3.5M from the Wise Family Foundation of Toronto, Canada. These generous commitments support the $12 million expansion of PATH, the next phase of MSSNG, to include not only whole genome sequence data but also … of the data and findings. These larger datasets increase the ability for researchers to find patterns and connections in groups of very different people. Due to the broad and variable ways each person is affected by autism, when testing … people.” About Autism Care Network A first of its kind learning health system for autism, the Autism Care Network, with support from Autism Speaks is built on more than a decade of work in improving autism care and a family-centered approach to …
Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …
COVID-19 survey reveals widespread challenges for autism community and wider disparities for minority communities … community are struggling even more, particularly with basic needs.” Minority respondents, who made up about half of the group surveyed, reported more struggles with a variety of needs related to the pandemic, basic needs, daily routines and education. The largest disparities were in the areas of food insecurity and receiving distance learning supports, with nonwhite respondents experiencing twice the food insecurity of white respondents and twice as likely to not receive any distance learning supports. Food insecurity was measured as food for the household having run out and families not having enough money to buy …
Expert Q&A: Explaining the conditions that accompany autism… In this Q&A, Amanda Bennett Palladino, MD, MPH, shares some of the most common conditions that accompany autism and offers support and resources to those coping with co-occurring conditions. Amanda Bennett Palladino is a developmental and … their care team. I frequently refer families to the Autism Speaks website to access the free Tool Kits that are designed to support families in addressing some of the most common co-occurring conditions. Families can find resources related to … caring for people with autism. Find local experts and/or advocates, participate in a research study or community advocacy group, find an online community if you can’t find a local one. The resources are there, in one form or another, if you just …
Autism Speaks Names 2017 Weatherstone Predoctoral Fellows… career scientists pursuing autism research. Lady Weatherstone and daughter Cheryl Weatherstone-Vance continue to actively support this fellowship program on a personal level. The 2017 class brings the number of Autism Speaks Weatherstone … and daily living among adolescents affected by autism. Her goal is to guide the development of more-effective programs for supporting a successful transition to adulthood. Read more about Maya Reiter's research project here . Evan Geller Under the … understanding and treatment of anxiety, depression and other mental health problems that commonly occur in this vulnerable group. Read more about Jessica Greenlee's research project here . Elyza Kelly Under the mentorship of Peter Tsai at …