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The Hatching Hope Foundation brings advocacy and support to Dallas-Fort Worth families… triplets, was diagnosed with autism in 2012 at age 2.5, she struggled to find much-needed information, services and social supports in her area. This struggle motivated Sabrina to commit her life to helping underserved families in Ft. Worth, Texas … she founded the Hatching Hope Foundation, an organization that provides parent training about autism, individual and family support services, and special education advocacy. In 2019, Keshawn tragically passed away from Osteosarcoma, a rare form of … someone who really understands what it’s like to be a parent living with a child with severe autism. Our Facebook support group, Autism Mocha Moms , has been another great way to connect with parents in the community. The group was created to …
Autism Speaks awards $135k in grant funding to support Latino autistic youth in Houston, TX … the transition to adulthood for Latino autistic youth. As a major funder of autism research, Autism Speaks is committed to supporting research and innovation that drives towards improved quality of life and well-being for individuals with autism … Shih. “The grant for this year’s postdoctoral fellowship aims to bridge the service gap in Houston, enhancing mental health support and easing the transition to adulthood for these youth." This year, fellowship applicants were required to focus on … mental health conditions. This fellowship funds a pilot test of this community-developed telehealth program, among a group of 30 Latino autistic young adults and their families, aiming for broader outreach in the region. … Autism Speaks …
Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …
The Autism Care Network works to expand access to autism diagnosis in Canada… becoming increasingly difficult to keep up with the need for autism assessment. We’re fortunate to work with a wonderful group of community pediatricians who are engaged with lots of autistic kids, so we saw an opportunity for them to take on an advanced practice role in autism diagnosis. We began to work on developing the optimal training approach to support this group and came up with a three-step educational process. We’ve done the training three times now and we’re … child communicates, expresses themselves and plays. We also shared information about community resources, how the different supports and services are funded, and how families navigate services. The second phase was mentored assessments in the …
Review of interventions for autistic adults finds lack of evidence-based treatments … of related studies found that very few treatments have been studied to effectively address the specific needs of this group. The review also found that priorities of autistic adults were overlooked in the existing research. In a review … question about which of these outcomes matter most to autistic adults, and far more research is needed to recommend ways to support health as they age.” Research into autistic adult health has identified several health outcomes, such as early … the federal Interagency Autism Coordinating Committee. Of the studies reviewed, two interventions showed some evidence of supporting better psychiatric health outcomes. Cognitive behavior therapy and mindfulness-based interventions, both …
Autism in Africa: Transforming care and services for a brighter future… spectrum disorder (ASD) and other developmental disabilities face stigmatization, delayed diagnosis and limited access to support services. In many countries, challenges in service delivery are compounded by humanitarian concerns like armed … meeting of the minds focused on advances in global science, practice and policy. As I sat among this distinguished group ahead of International Day of Persons with Disabilities, I was proud to represent Autism Speaks alongside my … and UNICEF to launch the Global Report on Children with Developmental Disabilities . Developed with technical and financial support from Autism Speaks, this report is a roadmap for advocates and policymakers in underserved countries around the …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Social skills classes produce lasting benefits for adults with autism… or other caregivers received training on how to coach the participants outside of class. Conversation, humor and more The group classes focused on conversational skills, appropriate use of humor and electronic communication, identifying sources … in the study, the researchers propose. “Our study offers encouraging findings that, through an evidence-based, caregiver-supported intervention, adults with autism can improve in ways that may help them be more successful in these aspects of … exist for young adults on the spectrum. “It’s exciting to see a community-based treatment model using caregiver support to help improve social skills,” comments Kara Reagon, Autism Speaks associate director of dissemination science. …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …