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The Hatching Hope Foundation brings advocacy and support to Dallas-Fort Worth families… triplets, was diagnosed with autism in 2012 at age 2.5, she struggled to find much-needed information, services and social supports in her area. This struggle motivated Sabrina to commit her life to helping underserved families in Ft. Worth, Texas … she founded the Hatching Hope Foundation, an organization that provides parent training about autism, individual and family support services, and special education advocacy. In 2019, Keshawn tragically passed away from Osteosarcoma, a rare form of … someone who really understands what it’s like to be a parent living with a child with severe autism. Our Facebook support group, Autism Mocha Moms , has been another great way to connect with parents in the community. The group was created to …
Autism Speaks awards $135k in grant funding to support Latino autistic youth in Houston, TX … the transition to adulthood for Latino autistic youth. As a major funder of autism research, Autism Speaks is committed to supporting research and innovation that drives towards improved quality of life and well-being for individuals with autism … Shih. “The grant for this year’s postdoctoral fellowship aims to bridge the service gap in Houston, enhancing mental health support and easing the transition to adulthood for these youth." This year, fellowship applicants were required to focus on … mental health conditions. This fellowship funds a pilot test of this community-developed telehealth program, among a group of 30 Latino autistic young adults and their families, aiming for broader outreach in the region. … Autism Speaks …
Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …
The Autism Care Network works to expand access to autism diagnosis in Canada… becoming increasingly difficult to keep up with the need for autism assessment. We’re fortunate to work with a wonderful group of community pediatricians who are engaged with lots of autistic kids, so we saw an opportunity for them to take on an advanced practice role in autism diagnosis. We began to work on developing the optimal training approach to support this group and came up with a three-step educational process. We’ve done the training three times now and we’re … child communicates, expresses themselves and plays. We also shared information about community resources, how the different supports and services are funded, and how families navigate services. The second phase was mentored assessments in the …
Autism in Africa: Transforming care and services for a brighter future… spectrum disorder (ASD) and other developmental disabilities face stigmatization, delayed diagnosis and limited access to support services. In many countries, challenges in service delivery are compounded by humanitarian concerns like armed … meeting of the minds focused on advances in global science, practice and policy. As I sat among this distinguished group ahead of International Day of Persons with Disabilities, I was proud to represent Autism Speaks alongside my … and UNICEF to launch the Global Report on Children with Developmental Disabilities . Developed with technical and financial support from Autism Speaks, this report is a roadmap for advocates and policymakers in underserved countries around the …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
Autism Speaks national board member Dr. Tom Frazier appointed to federal autism committee… has been appointed as one of two new members of the Interagency Autism Coordinating Committee ( IACC ), an advisory group on federal autism activities. He will serve alongside other public stakeholders as well as federal committee members … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people across the spectrum and of all ages,” said Dr. Frazier. “I look forward to working to ensure that …
Study finds health disparities for LGBTQ+ autistic adults … were among the respondents. “The healthcare system is not currently working for many LGBTQ+ autistic adults, when this group has a greater need for health services,” said Dr. Andy Shih, Ph.D., senior vice president, public health and inclusion … research at Autism Speaks demonstrates a large unmet need for healthcare for people with autism,” said Shih. “Where these groups intersect, the community and the healthcare system need to come together to provide added support and remove barriers to appropriate care.” … Study finds health disparities for LGBTQ+ autistic adults …
Autism Speaks announces pilot sites for groundbreaking project linking discovery science and clinical research… $6.15M including a leading gift of $3.5M from the Wise Family Foundation of Toronto, Canada. These generous commitments support the $12 million expansion of PATH, the next phase of MSSNG, to include not only whole genome sequence data but also … of the data and findings. These larger datasets increase the ability for researchers to find patterns and connections in groups of very different people. Due to the broad and variable ways each person is affected by autism, when testing … people.” About Autism Care Network A first of its kind learning health system for autism, the Autism Care Network, with support from Autism Speaks is built on more than a decade of work in improving autism care and a family-centered approach to …