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Autism Speaks and Royal Arch Masons fund 2 new studies on auditory processing disorder… Autism Speaks, with the support of a Royal Arch Research Assistance grant, is funding two pilot studies to understand central auditory processing … understanding and remembering information conveyed through speech and other sounds. “The Royal Arch Masons are generously supporting this work to help understand a major communication and learning challenge that affects many people with autism,” … 20 children with listening difficulties and autism ages 8 to 15. Moore’s team will compare them to data from two other groups of children, one with listening difficulties but not autism, and another group of typically developing children. …
Social media offers benefits for autistic community… are, it can be hard to find people locally who like the same things you like, or like them to the same degree. There are groups online for every interest imaginable. Some are open to people from all over the world, while others act as a … to understand, teach and guide us through the challenges of being neurodivergent in a neurotypical world. We can then support those who come after us. I believe that this cycle of mentoring relationships is one of the greatest strengths of …
Autism Speaks funds ECHO Autism Primary Care to bring better autism screening and care to your doctor’s office… the child’s behavior, learning and relationships. Each clinic features one individual provider who presents a case to the group, and everyone participating in the clinic gets the benefit of learning from that real case. “It’s a lot like the learning model in medical school,” Dr. Sohl says. “A group of providers – including experts in developmental medicine, behavioral health, and social work, plus a family advocate … family.” Now, all 12 ATN centers have ECHO Autism Primary Care groups operating or planned in their local areas, most with support from Autism Speaks. The ECHO Autism Primary Care model was originally tested at the University of Missouri, an ATN …
Study finds translation of parent survey is reliable at detecting autism in Chinese children… autism in young children. The Autism Spectrum Rating Scale is a tool for finding children with autism so they can get support. A family member or teacher fills out the survey if they believe a child has autism. Depending on the age of the … it out, there are four different versions of the survey, which was designed for English speakers in the United States. “Supporting children with autism is important not only in the United States but around the world,” said Andy Shih, Ph.D., … a tool that can be used with parent input to find children with autism who need supports and services.” A private research group, the Public Welfare Industry of Health of China, translated and shortened the Autism Spectrum Rating Scale into the …
Autism Caregiver Training: Helping families… about how they didn’t know what to do to help a child diagnosed with autism. “We don’t have the skills. We don’t have support,” they told me. We’ve heard these concerns in many parts of the world. Professional behavioral therapy isn’t … with autism. They’re clinicians with backgrounds in behavioral intervention and training as peer mentors who provide support to families who call their help line. In addition, we trained two members of the Newark school district’s special … Master Trainers train non-specialists we call Facilitators. The Facilitators go back to their local communities to conduct group programs and visit individual homes to share the strategies with parents free of charge. Many of our facilitators are …
Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …
Autism genetics study, aiming to increase Black representation, pivots during COVID … Minority communities overall are not well-represented in current autism genetics research populations . (Autism Speaks supported the initial Autism Genetics Network through a partnership with the lead UCLA researcher Daniel Geschwind, funded … up as little as 2.3 percent of samples in major genetic repositories (including AGRE), a small fraction of a demographic group that makes up 12.3 percent of the U.S. population. “Better racial and ethnic diversity in genetics is essential to … wore on, Graham began partnering with other community organizations around the UCLA site to offer families information and supports around autism while also educating them about the research opportunity with the Autism Genetics Network. She is …
Research reveals racial and ethnic disparities in benefits eligibility and spending among autistic adults… data. The data analysis showed significant differences in Medicare and Medicaid eligibility across racial and ethnic groups. About half of white adults (49.9%) were fully eligible for both Medicare and Medicaid. In contrast, only 37.5% … the pathways to dual eligibility status are more difficult for communities with lower rates of diagnosis and less access to support. Many individuals report that obtaining a Social Security disability determination is a challenging, time consuming process that requires education from providers and support from attorneys. Autistic adults without the time, money or knowledge to navigate these processes have a lower …
Challenges of COVID-19 disruptions: Guidance for autism service providers… lockdowns have been in place for a month or more. We hope this guidance will help you to continue your important work supporting people with autism and their families. Prepare before lockdown/during minimally restricted movement : Set up a … and prioritize the immediate needs for each family, including basic needs (food, medication, shelter) as well as caregiving support. If your health system has a patient portal or other way to communicate through the electronic health record, now is … tools, digital downloads, videos and other specific needs that families may request. Try to set up a caregiver support group via an online platform, such as Facebook groups or other technology such as WeChat, where parents and caregivers can …
Autism Speaks endorses sleep guidelines for children with autism … it is important to find a strategy that works for your child to help them get the sleep they need.” Although published by a group of specialists, these sleep guidelines are targeted to support primary care providers treating children with autism in their practices. The guidelines echo the best practices in …