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Autism Speaks awards $135k in grant funding to support Latino autistic youth in Houston, TX … the transition to adulthood for Latino autistic youth. As a major funder of autism research, Autism Speaks is committed to supporting research and innovation that drives towards improved quality of life and well-being for individuals with autism … Shih. “The grant for this year’s postdoctoral fellowship aims to bridge the service gap in Houston, enhancing mental health support and easing the transition to adulthood for these youth." This year, fellowship applicants were required to focus on … mental health conditions. This fellowship funds a pilot test of this community-developed telehealth program, among a group of 30 Latino autistic young adults and their families, aiming for broader outreach in the region. … Autism Speaks …
Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …
Autism in Africa: Transforming care and services for a brighter future… spectrum disorder (ASD) and other developmental disabilities face stigmatization, delayed diagnosis and limited access to support services. In many countries, challenges in service delivery are compounded by humanitarian concerns like armed … meeting of the minds focused on advances in global science, practice and policy. As I sat among this distinguished group ahead of International Day of Persons with Disabilities, I was proud to represent Autism Speaks alongside my … and UNICEF to launch the Global Report on Children with Developmental Disabilities . Developed with technical and financial support from Autism Speaks, this report is a roadmap for advocates and policymakers in underserved countries around the …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Autism Speaks to host Thought Leadership Summit on Challenging Behaviors… Autism Speaks will convene an invited group of researchers, clinicians, autistic adults and other autism community members virtually on Dec. 3 and 4, 2020, to … with social interactions or might not be appropriate for work or school, to behavior challenges that require significant support, such as aggression and self-injury. There are few programs that provide the level of care needed for those with more significant support needs, and families often face obstacles like distance and financial limitations that keep them from accessing them. …
Study finds translation of parent survey is reliable at detecting autism in Chinese children… autism in young children. The Autism Spectrum Rating Scale is a tool for finding children with autism so they can get support. A family member or teacher fills out the survey if they believe a child has autism. Depending on the age of the … it out, there are four different versions of the survey, which was designed for English speakers in the United States. “Supporting children with autism is important not only in the United States but around the world,” said Andy Shih, Ph.D., … a tool that can be used with parent input to find children with autism who need supports and services.” A private research group, the Public Welfare Industry of Health of China, translated and shortened the Autism Spectrum Rating Scale into the …
Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …
Researchers report findings on getting autism treatments into diverse communities … communities.  A series of presentations by panelists looked at access to services for different minority and ethnic groups as well as in international communities.  “Getting autism care and knowledge into communities means better access for … creative ways that researchers and providers are trying to distribute knowledge so that communities are better equipped to support people with autism where they live.”  In Washington, D.C., where 80 percent of the children enrolled in Medicaid are … program for early childhood educators.   Following a four-part training series, the educators felt better equipped to support children with autism in their care, but still reported that timely access to full evaluations and treatments …
Research meeting highlights access and intersectional challenges in U.S. and international communities … designed to reduce some of that resource burden.”  Early data presented by Wagner from the clinical trial of the TAP tool supported its effectiveness as a diagnostic tool for children who were referred for autism evaluation, but further research was needed to see if the tool would be effective at other sites with more mixed groups of children.  After testing the tool with 200 providers from across specialties, from pediatricians to school … are lifted.  In a related session, researchers at Children’s Mercy Kansas City presented findings about using telehealth to support caregivers during the pandemic. Located in an area with a range of patients from rural, suburban and urban …
Autism Speaks announces pilot sites for groundbreaking project linking discovery science and clinical research… $6.15M including a leading gift of $3.5M from the Wise Family Foundation of Toronto, Canada. These generous commitments support the $12 million expansion of PATH, the next phase of MSSNG, to include not only whole genome sequence data but also … of the data and findings. These larger datasets increase the ability for researchers to find patterns and connections in groups of very different people. Due to the broad and variable ways each person is affected by autism, when testing … people.” About Autism Care Network A first of its kind learning health system for autism, the Autism Care Network, with support from Autism Speaks is built on more than a decade of work in improving autism care and a family-centered approach to …