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Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …
Autism in Africa: Transforming care and services for a brighter future… spectrum disorder (ASD) and other developmental disabilities face stigmatization, delayed diagnosis and limited access to support services. In many countries, challenges in service delivery are compounded by humanitarian concerns like armed … meeting of the minds focused on advances in global science, practice and policy. As I sat among this distinguished group ahead of International Day of Persons with Disabilities, I was proud to represent Autism Speaks alongside my … and UNICEF to launch the Global Report on Children with Developmental Disabilities . Developed with technical and financial support from Autism Speaks, this report is a roadmap for advocates and policymakers in underserved countries around the …
Identical twins with autism differ significantly in severity of social traits… by our environment. It also confirms what we know about the importance of getting intervention as early as possible to support development,” said Autism Speaks Chief Science Officer Thomas W. Frazier. “Repeating this study with larger groups may help us understand those environmental factors where we might be able to best support optimal development for young children at risk for autism.” Using genetic data and clinical information, researchers …
Autism Speaks announces pilot sites for groundbreaking project linking discovery science and clinical research… $6.15M including a leading gift of $3.5M from the Wise Family Foundation of Toronto, Canada. These generous commitments support the $12 million expansion of PATH, the next phase of MSSNG, to include not only whole genome sequence data but also … of the data and findings. These larger datasets increase the ability for researchers to find patterns and connections in groups of very different people. Due to the broad and variable ways each person is affected by autism, when testing … people.” About Autism Care Network A first of its kind learning health system for autism, the Autism Care Network, with support from Autism Speaks is built on more than a decade of work in improving autism care and a family-centered approach to …
COVID-19 survey reveals widespread challenges for autism community and wider disparities for minority communities … community are struggling even more, particularly with basic needs.”  Minority respondents, who made up about half of the group surveyed, reported more struggles with a variety of needs related to the pandemic, basic needs, daily routines and education.  The largest disparities were in the areas of food insecurity and receiving distance learning supports, with nonwhite respondents experiencing twice the food insecurity of white respondents and twice as likely to not receive any distance learning supports. Food insecurity was measured as food for the household having run out and families not having enough money to buy …
Autism Speaks Names 2017 Weatherstone Predoctoral Fellows… career scientists pursuing autism research. Lady Weatherstone and daughter Cheryl Weatherstone-Vance continue to actively support this fellowship program on a personal level.  The 2017 class brings the number of Autism Speaks Weatherstone … and daily living among adolescents affected by autism. Her goal is to guide the development of more-effective programs for supporting a successful transition to adulthood. Read more about Maya Reiter's research project here . Evan Geller Under the … understanding and treatment of anxiety, depression and other mental health problems that commonly occur in this vulnerable group. Read more about Jessica Greenlee's research project here . Elyza Kelly Under the mentorship of Peter Tsai at …
Autism Speaks awards over $550,000 for autism research… more effective, personalized care in the years ahead,” said Autism Speaks Chief Science Officer Andy Shih. “We are proud to support a promising group of young scientists who are propelling the field of autism research forward in new directions.”  Grant applications …
Pediatrics journal dedicates supplement publication to autism studies … for Children and Youth With Autism Spectrum Disorder,” include both provider guidance and new findings based on network-supported research studies. Some highlights of the research findings include: 93 percent of families of children with autism … therapies, and few of those are receiving the recommended amount. Psychotropic medications are also being used in this age group. Certain racial, ethnic and socioeconomic groups experience barriers to getting appropriate autism care and report … obstacles to getting appropriate autism care. Shared decision-making, provider follow-up on service navigation and provider support on weighing service options are potential provider strategies to ensure follow up on referrals for needed services. …