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Down Syndrome and Autism Spectrum Disorder (DS-ASD)… lead to a better understanding of your child’s behavior and give you access to critical autism resources, interventions and support that have been shown to improve outcomes. A formal diagnosis could: A formal diagnosis can legitimize a family’s concerns about their loved one’s development and open the door to greater community and support. Help parents and family members better understand, support and guide their loved one Explain why your loved one is … 2nd Edition, 2024 (Froehlke and Sattel) Professionals Recommendations to Providers Handout Down Syndrome Medical Interest Group USA (DSMIG-USA) Association of University Centers on Disabilities AAP Guidelines National List of Down Syndrome …
Meet Rebekah F.… looking for new ways to bring the best out of her students. She tailors lesson plans to highlight their strengths and support their weaknesses and pulls from personal experiences that have provided her with the type of insight many teachers … advice from books and informational packets from the pediatrician, Rebekah’s parents would eventually help her obtain the support she needed to get on track to reaching her full potential, but it was a long, winding journey filled with many ups … me realize at 20 years old that I could do better too. I watched Star Trek every night and later came to join a Star Trek group where I found people that I was able to talk to and get better at my social skills. Because it took me so long to be …
My son with autism is overcoming his challenges, finding his strengths… Sandy Petrovic is a registered nurse, an author, a public speaker, an instructional advisor/tutor in a college academic support center, and the mother of a son on the spectrum. Click here for more about us and the book we co-authored from each … even consciously considered; the social rejection David experienced when he wanted nothing more than to be part of the teen group; the years that he was bullied and lonely; the panic attacks and near-depression that he endured as a result of … relish these challenges and are confident that David will master them in his own time and in his own way, with the help and support of family and mentors—much as he has handled every other hurdle in the past—and just like every other young adult …
Autism Speaks announces pilot sites for groundbreaking project linking discovery science and clinical research… $6.15M including a leading gift of $3.5M from the Wise Family Foundation of Toronto, Canada. These generous commitments support the $12 million expansion of PATH, the next phase of MSSNG, to include not only whole genome sequence data but also … of the data and findings. These larger datasets increase the ability for researchers to find patterns and connections in groups of very different people. Due to the broad and variable ways each person is affected by autism, when testing … people.” About Autism Care Network A first of its kind learning health system for autism, the Autism Care Network, with support from Autism Speaks is built on more than a decade of work in improving autism care and a family-centered approach to …
Legislator Jim Patterson remembered as a legislative champion… Parents and activists gave up time at work and drove for hours to make sure legislators saw them (and their children). A group of Democratic and Republican senators warned that they would hold the session hostage if the bill didn't come to a … for Representative Patterson’s leadership, dedication, and perseverance; and we will honor his memory as we continue to support individuals with autism in Alabama. The following arrangements have been made for Jim Patterson: Visitation – …
Autism Speaks commends Tennessee as it becomes 50th state requiring that insurance plans cover autism… On August 1, the Tennessee Department of Commerce and Insurance issued a bulletin requiring all individual, small and large group plans to cover medically necessary care for autism, including applied behavior analysis (ABA). "People with autism and … and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes …
Autism and ‘optimal outcomes’… to rethink what we mean by “optimal outcomes” For years, we’ve been using this term to describe a relatively small group of people with autism who, with therapy and support, experience such a marked decrease in autism symptoms that they no longer meet the criteria we use to diagnose the … re-defining “optimal outcome” as the best possible outcome based on each child’s personal characteristics and available supports . We find this as a much more suitable concept for developing autism services and setting goals for each child, …
Meet Sarah Robin K.… I also think I’m very good at making important life choices and knowing what’s best for myself. What type of services and supports have you received since being diagnosed? I have received emotional support, behavioral therapy, certified peer specialist, med management and blended case management. What does being a … that I was able to graduate high school with honors, have a job, live independently and have an amazing family and a great group of friends. How has Autism Speaks positively impacted your life since being diagnosed? Autism Speaks was there to …
COVID-19 survey reveals widespread challenges for autism community and wider disparities for minority communities … community are struggling even more, particularly with basic needs.” Minority respondents, who made up about half of the group surveyed, reported more struggles with a variety of needs related to the pandemic, basic needs, daily routines and education. The largest disparities were in the areas of food insecurity and receiving distance learning supports, with nonwhite respondents experiencing twice the food insecurity of white respondents and twice as likely to not receive any distance learning supports. Food insecurity was measured as food for the household having run out and families not having enough money to buy …
Expert Q&A: Explaining the conditions that accompany autism… In this Q&A, Amanda Bennett Palladino, MD, MPH, shares some of the most common conditions that accompany autism and offers support and resources to those coping with co-occurring conditions. Amanda Bennett Palladino is a developmental and … their care team. I frequently refer families to the Autism Speaks website to access the free Tool Kits that are designed to support families in addressing some of the most common co-occurring conditions. Families can find resources related to … caring for people with autism. Find local experts and/or advocates, participate in a research study or community advocacy group, find an online community if you can’t find a local one. The resources are there, in one form or another, if you just …