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Researchers outline method to create gene list for autism-linked genetic variants … A multidisciplinary group of autism researchers proposed a new method for identifying whether certain gene changes are linked to autism, in a … know how certain gene changes impact a person with autism, ultimately helping us to develop tailored treatments that will support that person,” said Dr. Thomas Frazier, Ph.D., Autism Speaks chief science officer and an author of the paper. After … an autism diagnosis, providers will be better able to offer autistic children and adults more personalized health care and supports. … Researchers outline method to create gene list for autism-linked genetic variants …

Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …

Autism Speaks endorses sleep guidelines for children with autism … it is important to find a strategy that works for your child to help them get the sleep they need.” Although published by a group of specialists, these sleep guidelines are targeted to support primary care providers treating children with autism in their practices. The guidelines echo the best practices in …

Study finds health disparities for LGBTQ+ autistic adults … were among the respondents. “The healthcare system is not currently working for many LGBTQ+ autistic adults, when this group has a greater need for health services,” said Dr. Andy Shih, Ph.D., senior vice president, public health and inclusion … research at Autism Speaks demonstrates a large unmet need for healthcare for people with autism,” said Shih. “Where these groups intersect, the community and the healthcare system need to come together to provide added support and remove barriers to appropriate care.” … Study finds health disparities for LGBTQ+ autistic adults …

Spotlight on the Gut Bacteria-Brain Connection in Autism… field was reflected by presentations at Neuroscience 2013 this week. The idea of a gut-brain connection isn’t new. It’s supported by a large body of research showing continuous communication between the bacteria that inhabit the digestive tract … brain development. Gut bacteria, propionic acid and autism For more than a decade, Derrick MacFabe and his autism research group at Western Ontario University have been investigating how certain antibiotic-resistant gut bacteria may interfere with … autism-like changes in brain development, as well as evidence of intestinal inflammation. Though preliminary, the findings support Dr. MacFabe’s theory that the production of propionic acid and related fatty acids by antibiotic-resistant gut …

COVID-19 survey reveals widespread challenges for autism community and wider disparities for minority communities … community are struggling even more, particularly with basic needs.”  Minority respondents, who made up about half of the group surveyed, reported more struggles with a variety of needs related to the pandemic, basic needs, daily routines and education.  The largest disparities were in the areas of food insecurity and receiving distance learning supports, with nonwhite respondents experiencing twice the food insecurity of white respondents and twice as likely to not receive any distance learning supports. Food insecurity was measured as food for the household having run out and families not having enough money to buy …

Autism Speaks awards over $550,000 for autism research… more effective, personalized care in the years ahead,” said Autism Speaks Chief Science Officer Andy Shih. “We are proud to support a promising group of young scientists who are propelling the field of autism research forward in new directions.”  Grant applications …

Family Advisors:  The power and importance of connection… MPA. For many families who care for a loved one with autism spectrum disorder, access to knowledge and resources to support autism is critical. The right supports can enhance a life that is meaningful and productive. For me and my colleague, Liza Krassner, we understand how … of the Autism Speaks Autism Treatment Network /Autism Intervention Research Network on Physical Health (ATN/AIR-P). This group of 12 sites across the U.S. and Canada represent a wide array of autism services, research and clinical programs, …

Pediatrics journal dedicates supplement publication to autism studies … for Children and Youth With Autism Spectrum Disorder,” include both provider guidance and new findings based on network-supported research studies. Some highlights of the research findings include: 93 percent of families of children with autism … therapies, and few of those are receiving the recommended amount. Psychotropic medications are also being used in this age group. Certain racial, ethnic and socioeconomic groups experience barriers to getting appropriate autism care and report … obstacles to getting appropriate autism care. Shared decision-making, provider follow-up on service navigation and provider support on weighing service options are potential provider strategies to ensure follow up on referrals for needed services. …