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Calls to Action

Autism Speaks Endorses New York Autism Insurance Reform Legislation

March 04, 2009

ALBANY, NY (March 4, 2009) – Autism Speaks, the nation’s largest autism advocacy organization, today announced its support for S.2366/ A.6001, also known the autism insurance reform bill.  The legislation would require private health insurance companies to cover the screening, diagnosis, testing and treatment of autism spectrum disorder (ASD) for individuals up to the age of 21.   The maximum benefit would be $36,000 per year.

Sponsored in New York State Senate by Senator Charles J. Fuschillo, Jr. (8th Senate District) and in the State Assembly by Assemblyman Harvey Weisenberg (20th Assembly District), S.2366/A.6001 includes coverage of Applied Behavior Analysis (ABA), an evidence-based, medically-necessary autism therapy.

“We applaud and thank Senator Fuschillo and Assemblyman Weisenberg for their leadership on this issue of critical concern to thousands of New York State families,” said Elizabeth Emken, Autism Speaks Vice President of Government Relations.  “Autism Speaks joins New York’s autism community in calling on the legislature to pass S2366 and A6001 and join the growing number of states that have ended healthcare discrimination against children with autism.”

Most states do not require private insurance companies to cover even essential autism treatments and services.  In the absence of coverage, families often pay as much as they can out-of-pocket for services that can cost upwards of $50,000 per year.  In the process, many risk their homes and the educations of their unaffected children – essentially mortgaging their entire futures.

Eight states – Arizona, Florida, Louisiana, Illinois, Indiana, Pennsylvania, South Carolina and Texas -- have enacted autism insurance reform legislation.  Several other state legislatures will vote on similar legislation during the current session.