Your Dollars @ Work: Helping Families When They Need it Most

Thursday, February 27, 2014 View Comments

Because of your generous donations, Autism Speaks has been able to help tens of thousands of families struggling with what to do after an autism diagnosis. 

Since 2008, the Autism Speaks 100 Day Kit has been mailed out to nearly 10,000 families of children recently diagnosed with autism free of charge. The kit has also been downloaded for free over 80,000 times.

The 100 Day Kit was created six years ago specifically for newly diagnosed families to make the best possible use of the 100 days following their child's diagnosis of autism. The goal is to guide families through those 100 days, and beyond, while they learn, make decisions and set in motion a plan to change the course of their child's life with autism.

In addition, in 2011 we created the Asperger Syndrome/High-Functioning Autism Tool Kit for newly diagnosed families. Since then, the kit has been mailed out to nearly 2,500 families and downloaded over 22,000 times. 

Sections of the kit include: Autism Diagnosis, Causes and Symptoms, Family Tips, Early Intervention, Education Rights, Assembling a Team and more!

The responses we have gotten from our community have been truly amazing. A few are posted below:

“I just want to say a great big thank you for my son's kit. It is absolutely wonderful. It was as if you looked into my head to see what I needed. I especially like the lists I could use for phone numbers and appointments. This will leave me feeling less overwhelmed.”

"Thank you for this kit!! I have just started reading it, and already I feel like I am not alone, nor is my child…THANK YOU!!!"

“We received the 100 Day kit a week after my son was diagnosed with autism. The kit is an invaluable blue print of where to begin. I appreciate all your effort - as well as the warm and friendly staff who called and added resources based on our location."

“Thank you so much for this lifesaving information! I feel so lost and frustrated sometimes because we have been dealing with this on our own for so long without guidance. Your kind assistance has made a difference.”  

The 100 Day Kit is also available in Spanish! Learn more about the Spanish version here.

"Toda la informacion que me puedan dara  orientar   se las  agradezco  se  que con amor, esfuerzo dedicacion puedo ayudarlo  a salir  adelante. Gracias por su ayuda."

We mail these kits out free of charge to all families of children diagnosed within the past six months. If you or someone you know might benefit from this helpful tool, contact our Autism Response Team to place an order at 888-288-4762, email them at familyservices@autismspeaks.org. For Spanish orders call 888-772-9050. For those who don't meet the criteria, the kits can also be downloaded free of charge here!

Please note both kits will be updated with new resources and information in 2014. Stay tuned!

Your Dollars @ Work is a blog series highlighting the important work of past recipients of Autism Speaks grants to give you a glimpse into how your donations are changing lives of so many in the autism community! Check out previous entries here.