IAN Research Findings: Social Skills Groups
The Interactive Autism Network (IAN), a project collecting information online from families of children with autism spectrum disorders (ASD) throughout the United States, reports that more than 14% of participating children are taking part in a social skills group. This percentage is even higher for older children, and children with PDD-NOS or Asperger's syndrome. Such groups are intended to address the core social deficit in ASD by improving social understanding and interaction. What research has been done on such interventions? What do families report about their experience with social skills groups?
| IAN is a web project of the Kennedy Krieger Institute sponsored by Autism Speaks. |
| Please Note: These Findings Are Preliminary The analyses presented here by the Interactive Autism Network are preliminary. They are based on information submitted over the Internet by parents of children with autism spectrum disorders (ASDs) from the United States who choose to participate. They may not generalize to the larger population of children with autism spectrum disorders. The data have not been peer-reviewed -- that is, undergone evaluation by researchers expert in a particular field -- or been submitted for publication. IAN views participating families as research partners, and shares such preliminary information to thank them and demonstrate the importance of their ongoing involvement. We encourage autism researchers investigating these topics to apply for access to the IAN database. Contact researchteam@ianproject.org. |
|
Social Interventions in Autism
An inability to process the social world is a key feature of autism. Researchers have worked to describe and understand the wide range of social deficits exhibited by people on the autism spectrum, including unusual eye gaze, impaired joint attention, and a lack of theory of mind, that is, an ability to attribute beliefs, intents, desires or other mental states to oneself and others, and to understand that these may be different in other people. How do "typical" people naturally establish eye contact, learn the "rules of conversation," or intuit what others know, feel, or intend? How are people with ASDs different? Knowing this is a first step to developing interventions that will help them compensate for what they lack: natural social connectedness and insight. Many socially based interventions have been developed in the trenches, so to speak, by clinicians, therapists, and educators trying to find a way to assist their clients and students on the spectrum. After all, addressing social challenges can be critical to success at school, at work, or in the larger world. Improved social functioning can also lead to more and better relationships -- something that may have a direct impact on mental health by preventing the feelings of isolation and loneliness that many older children and adolescents with ASD express. 1 The list of social skills programs and tools offered in schools and clinics is a long one, including:
Many of the tools described can be used in the context of a social skills group. There is no single formula for what such a group consists of, but the general idea is to bring individuals together to learn social skills and to practice them together in real time (since learning something social will likely require human interaction). Exactly what is learned depends a great deal on the needs of the group. Younger children might focus on the social rules they would encounter at a birthday party, for example, while older individuals might focus on dating and relationships, or situations in the work place. Social Skills Groups: What Does Research Tell Us So Far? Research on the effectiveness of social skills groups, just like research on social skills interventions more generally, has been fairly limited.17Research so far has consisted mostly of studies focused on a single social skills group. In other words, those working with individuals on the autism spectrum have described how a specific social skills group was organized, and have provided ratings of participants' skills before and after the intervention. Such studies provide a first glimpse into what techniques are being tried, and if they seem to have worked. If encouraging, they can point the way towards higher level, more complex, and more conclusive research. An example of such a study comes from Texas A&M University. Researchers there set out to examine the effectiveness of an outpatient social skills group for children ages 6 through 9 with high-functioning autism. Only four children participated. Group instruction targeted specific social skills, such as greetings, conversation, and play skills. Following each of eight sessions, the children with autism were observed in play sessions with typical peers who had received some instruction on ways to interact with children on the autism spectrum. Unfortunately, even with the inclusion of typical peers as part of the intervention, parents reported that only greeting skills had improved in social situations outside of treatment. Still, the children who participated reported feeling they had more social support from classmates at school after those students had received training on how to interact with them -- a beneficial outcome, though not the one the study set out to measure.18 In another study, eight adolescents with Asperger's syndrome or other high-functioning ASDs worked on nonverbal communication skills. Although the targeted skills did not improve much during the course of the group, friendships developed that seemed to outlast the formal group meetings.19 Considering that isolation, loneliness, low self-esteem, and even depression can affect adolescents and young adults with ASDs, it may be wise to target such outcomes as one purpose of group-based social skills interventions rather than considering them a side-effect. Comparing two types of social skills groups is a more complex form of research than looking at a single group, and can provide more insight. Taking such an approach, Kroeger and colleagues set out to evaluate two very different social skills groups. One involved unstructured play; that is, the children had a scheduled time to get together and just play. The other involved direct social skills teaching using a video-modeling format. While children in both groups increased positive social behaviors, those in the direct teaching group made more gains.20 These findings provide evidence that group interventions can be effective regardless, but that they are most effective when delivered in a direct instruction format -- a finding "consistent with research that indicates repetition and intensity within a structured setting are critical components to teaching social skills to children with autism." (p 815) Bauminger conducted a fascinating two-phase study on an individual vs. a group social skills intervention, both based on cognitive-behavioral therapy (CBT). In the first phase, children received individual CBT based social skills training. In the second phase, these same children, plus others who had not received individual training, took part in a group social skills program.21,22 Children who participated in the group intervention showed improvement in recognizing emotions and understanding others' perspectives. They improved in cooperative social interaction as well, at least within the context of the group. Unfortunately, these social interaction gains were observed beyond the group only for the children who had also received the individual intervention. It is interesting to note that the individual training had included components that were specifically intended to help the children generalize their new skills, that is, to help them apply them in settings other than the one where they learned them. Each child had met with a peer during school recess and at home to underscore skills learned during therapy, and parents had been urged to learn and emphasize the social skills lessons at home, too. The group intervention, in contrast, had not required practicing with peers or at home. The researchers concluded that building in such "beyond the group" practice might well be essential if children participating in a group intervention are to generalize their new skills to other settings and circumstances. When researchers review a number of studies addressing a similar treatment, they can begin to identify what seems to work across all of them. Reviewing five studies on social skills groups, for example, researchers at the University of Utah and the U.C. Davis M.I.N.D. Institute attempted to identify some "essential ingredients" for an effective social skills group.23 These central principles were:
(To learn more about RCTs, read Gold Standard of Evidence: The Randomized Controlled Trial [RCT].) Once a program's superior effectiveness can be demonstrated through a randomized controlled trial, studies can take place to show if it can be meaningfully conducted in settings outside of research centers, like schools or clinics. Such research is urgently needed. In the meantime, thousands of children are participating in social skills groups on a regular basis. What do families participating in the IAN Research project report about their experience of social skills groups? IAN Families Report on Social Skills Groups IAN families have reported on 34,646 autism treatments, from vitamins to medications, from educational programs to diets. Of these treatments, 1,672 -- or 4.8% -- are some type of social skills intervention. In many cases, children are receiving more than one social intervention at a time. Of the 6,592 children whose parents have provided treatment data, 942 -- or 14.3%-- are taking part in a social skills group. As might be expected, because social skills groups can be adapted to meet very different needs over the life span, children of all ages are participating in them (see Figure 1). Figure 1. |
|
| Social skills groups are also used by children of all autism spectrum diagnoses, although it appears they are used even more frequently to treat children with pervasive developmental disorder not otherwise specified (PDD-NOS) and Asperger's syndrome (see Figure 2). As we have seen, many social skills techniques attempt to directly teach information about social or emotional aspects of life. This may mean they are most effective for children whose cognitive ability is a relative strength. It may also mean that this is an intervention offered to higher functioning, more verbal, later diagnosed children who may never have received intensive early intervention such as applied behavior analysis (ABA). Figure 2. |
|
|
Targeted Symptoms Approximately 700 parents have reported in detail on social skills groups. The symptoms parents told us they hope to target are fairly specific: communication and social functioning are uppermost (See Figure 3). Figure 3. |
|
| (Key: GI = gastrointestinal; Allergic/Imm = issues involving allergic reactions or the immune system; Maladaptive = dysfunctional behaviors such as meltdowns or self-injury; Social = social skills of all kinds; Comm = communication; Stereotypy = stereotyped or repetitive behaviors; Exec Func = executive function; Neuro = neurological) Funding Sources, Insurance, and Out-of-Pocket Cost Over 60% of parents report their child's social skills group is funded by a public school, an early childhood program, or some other non-Medicaid program. Thirty-seven percent are receiving no public funding for the treatment at all (See Figure 4). Figure 4. |
|
| (Note: Numbers do not add to 100% due to rounding.) Those who enroll in a social skills group outside a public school or other public program generally have to pay out of pocket. Insurance rarely covers this treatment (See Figure 5). Figure 5. |
|
| (Note: Numbers do not add to 100% due to rounding.) The cost of this treatment varies. More than 60% report that the intervention cost them nothing, which makes sense considering it is around 60% who say they receive social skills group funding via a public program, like the local school. For the majority of the rest, however, the cost of participating in such a group is between $101 and $500 per month (See Figure 6). Figure 6. |
|
|
Expectations, Risks, and Experience As children embark on this therapy, many parents hope it will yield at least moderate improvement, though only 20% of parents expect “high” or “very high” levels of improvement (See Figure 7). Figure 7. |
|
At the same time, the vast majority of parents feel there is no or very little potential risk involved with trying a social skills group (See Figure 8). (Low risk is an attractive aspect of any proposed treatment.) Figure 8. |
|
| (Note: Numbers do not add to 100% due to rounding.) Those who have reported on their experience with the treatment give it high marks, with 77% saying it led to improvement. Reports on how great that improvement was were varied, however, with 20% saying “minimal,” 50% saying “moderate,” and 30% saying “high” or “very high” (See Figure 9). Figure 9. |
|
A word of caution: The information reported here reflects only parents' evaluation of current treatments. Because any treatment a child is currently receiving must be considered worthwhile by parents, we expect ratings to be fairly high at this point. As data are collected over time, and families can report on treatments they have dropped, there likely will be more negative reports, not just on this treatment, but on many treatments. Add to this the major impact of the placebo effect found in many autism treatment studies, and it is wise to take these findings as very preliminary and as yet incomplete. Research on Social Skills Groups – Next Steps Many questions remain, of course. What were these social skills groups? What aspects of social functioning were they intended to improve, and how did they target these? How appropriate were interventions to developmental social-emotional level, and were children able to build on social skills as they laid social foundations, brick by brick? Were children able to generalize the skills they learned in these groups to other situations? To what extent do these groups simply function as support groups for the children, and to what extent do they truly improve social cognition and social functioning? A great many children with ASDs are taking part in social skills groups, and much time, effort, and money is being devoted to these. It is therefore crucial that autism researchers identify promising group-based social skills programs, complete with manuals describing in detail how they should be conducted, and carry out randomized controlled trials to test their ultimate effectiveness. Great strides have been made towards showing social skills groups can be an effective autism intervention. Unfortunately, we still have a great distance to go before evidence-based social skills programs are easily available to every school and clinic. To Share Your Thoughts About These Findings… If you have comments and insights about these preliminary findings, please share them in the research-focused IAN Community Discussion Forum under “IAN Research Reports” and then under “IAN Treatment Report Jan. '09 - Social Skills Groups.” Your feedback may influence future research. (Any member of the public may view these discussions, but to post, you must join IAN Community.) What Is IAN? The Interactive Autism Network is the nation's largest online autism research project. Its mission is to accelerate the pace of autism research. Families affected by autism answer questionnaires over the Internet, from the comfort of home. Researchers apply to IAN to use the resulting data, or to find participants for their local studies. IAN Community, meanwhile, provides evidence-based basic information on autism spectrum disorders, articles by leading researchers in the field, and reports on IAN's latest findings. To learn more about the IAN Project, please go to www.IANproject.org/. To join IAN Research, please go to www.IANresearch.org. Related Articles at IAN Community · Social Skills Interventions: Getting to the Core of Autism (more in depth article on social skills training of all kinds and related research) · IAN Treatment Series: Special Diets · IAN Treatment Series: Medication · IAN Treatment Series: Occupational Therapy |
|
References:
|
|
|
|
|
|
|
|
||||||||||
