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Why I advocate for Direct Support Professionals… by Kit Peterson, a grandmother of a young man on the autism spectrum. She is an advocate for fair pay for the direct support professionals who have become family to people like her grandson. Despite how difficult it was to accept our … are impacted: it begins right in Albany, but can reach far beyond New York State. We must raise our voices on behalf of a group who often cannot speak for themselves; they are our grandchildren. They need direct support professionals who can …
The Hatching Hope Foundation brings advocacy and support to Dallas-Fort Worth families… triplets, was diagnosed with autism in 2012 at age 2.5, she struggled to find much-needed information, services and social supports in her area. This struggle motivated Sabrina to commit her life to helping underserved families in Ft. Worth, Texas … she founded the Hatching Hope Foundation, an organization that provides parent training about autism, individual and family support services, and special education advocacy. In 2019, Keshawn tragically passed away from Osteosarcoma, a rare form of … someone who really understands what it’s like to be a parent living with a child with severe autism. Our Facebook support group, Autism Mocha Moms , has been another great way to connect with parents in the community. The group was created to …
Autism Speaks strongly supports new rule to reduce barriers to health care services for many autistic people… Autism Speaks joined in coalition with other key health advocacy organizations to strongly support the Mental Health Parity and Addiction Equity Act (MHPAEA) proposed rule , issued by the Department of Treasury, the … such as applied behavior analysis, occupational therapy, and speech therapy, cannot be excluded from any individual or group health insurance plan subject to MHPAEA. Evaluating network adequacy and design issues We also support the … … Autism Speaks strongly supports new rule to reduce barriers to health care services for many autistic people …
Virginia passes legislation to expand autism insurance mandate… for the diagnosis and treatment of autism spectrum disorder for children ages two to six under state-regulated, large group plans. In 2015, we passed legislation that raised the age cap to ten years old. This year, the state legislature has … individuals with autism of all ages under state-regulated, large group plans starting in January 2020. We appreciate the support of our legislative champions and the growth in bipartisan support over our ten years of autism insurance work in Virginia, and we are grateful for the collaboration and determination …
Utah autism insurance mandate expanded! … requiring coverage for the diagnosis and treatment of autism spectrum disorder under state-regulated, individual and large group plans. However, this coverage was limited to children ages 2-10 years old. Coverage for behavioral health treatments, … behavior analysis (ABA), was also limited to 600 hours per year (approximately 11.5 hours per week). Thanks to the support of the Utah state legislature and Governor, these restrictions in coverage for autism have been removed. Effective … and treatment of autism if claims for autism coverage caused premiums to increase in excess of 1%. We are grateful for the support of the legislative champions and local advocates that helped achieve this milestone! Access to meaningful and …
Autism in Africa: Transforming care and services for a brighter future… spectrum disorder (ASD) and other developmental disabilities face stigmatization, delayed diagnosis and limited access to support services. In many countries, challenges in service delivery are compounded by humanitarian concerns like armed … meeting of the minds focused on advances in global science, practice and policy. As I sat among this distinguished group ahead of International Day of Persons with Disabilities, I was proud to represent Autism Speaks alongside my … and UNICEF to launch the Global Report on Children with Developmental Disabilities . Developed with technical and financial support from Autism Speaks, this report is a roadmap for advocates and policymakers in underserved countries around the …
Idaho becomes the 47th state to require autism insurance coverage!… families with children who have autism, health advocates, and state officials to celebrate increased acceptance and support for individuals with autism. The ceremony began with Lt. Governor Brad Little's proclamation signing in recognition … for individuals with autism. The bulletin issued by the Idaho Department of Insurance requires all individual, small group and large group insurance plans to cover evidence-based treatment for autism, including Applied Behavior Analysis. In Cameron’s …
Autism Speaks executive Val Paradiz appointed to federal autism committee… U.S. Department of Health and Human Services announced today that Valerie Paradiz, Ph.D., vice president of services and supports at Autism Speaks, has been appointed as one of 20 new as well as two returning public members of the Interagency Autism Coordinating Committee (IACC), an advisory group on federal autism activities. Along with federal members of the committee from key agencies and departments serving … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people of all ages,” said Dr. Paradiz. “I look forward to working with other members of the committee to …
Autism Speaks statement in response to reports of surge in COVID-19 cases among people with disabilities… swift action to respond to the immediate needs of people with autism and their families – through advocacy, services and supports, resources and direct assistance. We are deeply concerned by reports of increased incidence of COVID-19 among people with disabilities, particularly in group homes, as reported by the New York Times and other news outlets. In response to news of the rapid spread of COVID-19 … but reduce the risk of injury, neglect, abuse and death for residents at overburdened facilities. Congress must do more to support the disability community in the next COVID-19 relief bill. It is crucial that the bill include additional funds for …
Want to make a difference? An autism advocate shares her tips… the tide for countless Hispanic families. Autismo en mi Vida, her pioneering non-profit, is not just offering bilingual support; it's revolutionizing the way Spanish-speaking families perceive and tackle autism. And with the platform of the … insights for families eager to ignite change in their communities. Have questions? Contact our Autism Response Team for support in Spanish (1-888-772-9050, ayuda@autismspeaks.org ) and English (1-888-288-4762, help@autismspeaks.org ) You’ve … need? Eight years ago, I formed Autismo en mi Vida with four parents I met in my son’s therapy office. It was a very small group and we just wanted to find people that we could talk to—somebody who could understand what we were going through, and …