AIR-P Research Open RFA - Information HERE
ATN Patient Research Registry for Secondary Data Analysis
Access patient data on more than 6,900 children and teens with ASD
- What is the ATN Research Registry
- Benefits of Registry for Researchers
- ATN Patient Registry Clinical Research
- Easy to Use Data Query Tool
- Published, Evidenced-based Results
Download the Research Registry brochure here.
What is the ATN Research Registry?
The Autism Treatment Network (ATN) is a collaboration of Autism Speaks® and a ground- breaking network of hospitals, physicians and researchers at 14 sites across the United States and Canada. A large part of the network’s services is centered around clinical and health related research of individuals with autism. Behavioral and medical data from the care and outcomes of children seen in the network facilities is stored in a Registry Database and includes information on more than 6,900 children and teens ranging from 2 – 17 ½ years of age.
Benefits of ATN Research Registry
Scientiﬁc research and clinical study of autism plays a crucial role in ﬁnding answers, improving outcomes and advancing health. But research is time-consuming and costly.
Evidence-based independent research can require IRB approval, design study, subject cultivation, surveillance and assessment, staff for data collection and entry.
With the ATN Research Registry you can:
- Access behavioral and medical patient data on more than 6,900 children and teens with ASD
- Gain unique opportunity for secondary analysis
- Utilize Cross-sectional (primary) and longitudinal data
- Collaborate and share scientific knowledge with leaders in autism clinical care
- Leverage ATN expertise, resources and infrastructure
- Save valuable time and reduce expensive research study costs
ATN Patient Registry Clinical Research
The ATN Patient Registry database is currently available for use in clinical research of autism-related issues. Researchers interested in utilizing ATN data for collaborative clinical research or in learning more about secondary data analysis opportunities may contact ATN@AutismSpeaks.org
Behavioral and medical data from the care and outcomes of children seen in the network facilities is stored in the database and includes phenotypic data on more than 6,900 patients ranging from 2 – 17 ½ years of age. Biomaterials are available from more than 250 patients and continues to grow.
(available from more than 6,900 patients)
- ADIR on a Subset
- Cognitive Assessment
- Vineland Adaptive Behavior Scale
- Medical Data
- Child Behavior Checklist
- Pediatric Quality of Life
- Communication Measures on Subset
- Longitudinal Measures on Subset
(available from more than 250 patients)
- Cell Lines
- Whole Blood
- Metabolic Samples
Easy to Use Data Query Tool
Refine your data search with our easy-to-use Query Tool. Information can be sorted based on your needs and preferred format by:
To search the ATN dataset: asatn.org/asatn-query
Published, evidence-based results
Autism Speaks is the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Research utilizing data from the ATN Registry has resulted in published studies in peer review publications including the Journal of Autism and Developmental Disorders, Pediatrics and the Journal of Developmental and Behavioral Pediatrics.
Scientific research studies to date have included:
- Metabolic, genetic and gastrointestinal concerns
- Psychiatric comorbidity and sleep disturbances
- Neurological problems, metabolic disorders