Concepcion and Jury’s journey raising a son with level 3 autism

National Caregiver Awareness Month is all about highlighting the strength of those who help make autistic people who they are, showcasing that autism isn’t defined by a diagnosis, but rather what you make of it. Concepcion and Jury, parents to six-year-old Justice, a child with level three autism, are some of the many caregivers that work tirelessly to ensure that their children get to a position of success.

Get to know Concepcion, Jury and their son, Justice, 6

While the family’s journey hasn’t been perfect, Justice’s parents have been there every step of the way to provide guidance, love and support. We recently interviewed the parents to discuss an array of topics around their child’s journey, including celebrating the small progression that people with Level 3 autism achieve and their advice for parents who might be facing situations.

What kind of support and services have been the most helpful for your son throughout his life?

Our son has been receiving occupational and speech therapy since the age of three. When he started school at four years old, we observed significant improvement, and the therapies have been very beneficial for his overall development. Every year, we visit his developmental pediatrician for an assessment. However, I also reach out to his doctor whenever I have concerns or questions, so our communication is not limited to yearly appointments. She is always kind enough to respond through calls or emails, which is why finding the right doctor is something I can’t stress enough to other parents out there.  

In addition to the professional support he receives, I believe that the understanding and encouragement from our family play a vital role in his continued progress and overall well-being.

How do you balance your son’s need for support with encouraging their independence?

We encourage our son to complete his activities as independently as possible and to ask for help only when necessary. However, it can be challenging for him to stay focused because of his short attention span. At times, he makes excuses such as needing to use the bathroom or feeling sleepy. Because of this, we often stay by his side to guide and motivate him while he works on his tasks. To encourage his effort, we sometimes offer small rewards, such as an hour of screen time or his favorite cookies, when he successfully completes an assignment.

How do you take care of yourself while being a caregiver? Why is that so important?

To be honest, it has been difficult for us to take care of ourselves because of our son’s needs, especially since we don’t have a helper. We are both working parents, yet we remain very hands-on in caring for him. It’s hard for us to entrust his care to anyone outside our family, as he is non-conversant and unable to express his feelings clearly.

Instead, we make it a point to look out for each other. For instance, when I notice that my husband is tired, I let him rest while I take over the chores and care for our son — and he does the same for me. It’s all about teamwork and good time management. Whenever we find even a small window of time, we make sure to rest and recharge, knowing that our well-being also matters in giving our son the best care possible.

Are there strategies or routines that help you manage stress or avoid burnout?

Unfortunately, we don’t always have the luxury of personal time, as it’s just the three of us at home and we don’t have a helper. However, whenever we have the chance to go out, watch TV, or simply enjoy our favorite food together, we make the most of it. Sometimes, we ask our family to look after our son for a day so we can have a short break. We are truly grateful to have such a strong and supportive family surrounding us.

What advice would you give to other parents or caregivers navigating similar situations?

My advice is to be patient — to really have that deep, lasting patience. It’s easier said than done, but it’s truly what’s needed. There will be times when you feel exhausted or burned out, but at the end of the day, you’ll realize that this is your purpose.

It’s also important to take care of your mental health and ask for help when needed. Remember, it’s okay to pause and take a break — that doesn’t make us bad parents. We’re only human, and we get tired too. Finding balance is essential, both for ourselves and for our children.

What do you wish others understood better about being a caregiver for an autistic child with high support needs?

It’s not easy being in this situation. We didn’t choose this path, but we believe that God chose us for a reason. People with autism are simply built differently — they have emotions, they care, and they deserve understanding and respect. I hope that others will not be quick to judge them, nor the parents and caregivers who support them.

Behind our smiles, there is a silent battle we fight every day — physically, emotionally, and financially. It’s not easy, but despite everything, we continue to find light and strength in our journey.

❗New resource alert❗

If you want to take the best possible care of your child, you must first take the best possible care of yourself. Be sure to check out our simple self-care tips to help you recharge and be the best for both you and your loved one.