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How do we explain autism diagnosis & special class to our 7-year-old?

Our 7-year-old was recently diagnosed with autism spectrum disorder. He’ll be moved to a new classroom and begin ABA therapy in the next few weeks. Can you give us some advice on helping him understand what’s going on?

Today’s “Got Questions?” answer is by education specialist Lucia Murillo (left), and social worker Lindsay Naeder, assistant director of the Autism Speaks Autism Response Team.

 

Thank you for your question. It’s one we hear from many of the parents who call or email our Autism Response Team (888-288-4762, en Español 888-772-9050, familyservices@autismspeaks.org).

We’ve pulled together a number of helpful resources for parents. But first, we’d like to share some guidance on how to guide the conversation based on your child’s perspective:

* To the extent possible, bring your child into the conversation. Find out what questions he has. For instance, does he have questions about the diagnostic evaluation he just completed? About why he’s changing classrooms? Let his questions guide the conversation and help you ease his personal concerns. In the process, you’ll be letting your child know that his opinion is valuable. This will encourage him to come to you with concerns and challenges in the future.

* Explain his move to a new classroom in positive terms. For example, you might say something along the lines of the following:

“We want to make sure you’re getting all the help you need in school. The teachers in your new class will be able to give you more one-on-one time and make sure you can follow what the class is doing.”

* Explain that autism – the condition that his evaluation identified – explains some of his social and communication challenges. Relate these to his personal experience. For example, you might say …

“Everyone has strengths and challenges. For instance your sister is good at math but not so good at drawing – which is one of your special talents. Many kids who have autism share certain challenges. Remember when you missed doing the art project last week because all the noise and talking upset you? Well, many kids with autism have a hard time paying attention when many things are happening around them. In your new class, your teachers will understand this and help you.”

* Also explain that autism occurs across a spectrum. For example, you might say …

“Many kids with autism have difficulty paying attention and knowing how other people are feeling. Some can’t use words well. Everyone is different though. You can talk just fine. But you have some trouble knowing how other people are feeling.”

* Help your son with some sample language he can use to explain his autism to others in situations when they don’t understand his behavior. For example, you might say…

“You know how it bothers you to take a different route to the store so we always take the same path? Some people might not understand why this change bothers you so much. You might need to tell them, ‘I have a hard time with change. This is because I have autism.’ ”

* In preparing for your conversation with your son, it may help to talk with close friends and relatives, including your son’s older siblings or cousins. Ask what questions come up for them when they interact with your son. These insights can help you and your son understand what others might be wondering when they interact with him. (You’re with your son every day. So you’re used to his different behaviors and how to respond to them.) In addition, you might share this information with his teachers and therapists to help them identify areas where your son can use coaching and help.

Now for those resources we promised you (follow the links) …

* Explaining the Diagnosis to your Child, from the Autism Speaks Tool Kit on Asperger Syndrome and High-Functioning Autism

* Autism Basics (“What to Keep in Mind,” “How Best to Help”), from the Autism Speaks School Community Tool Kit. Also see the “About Me” profile form in this tool kit’s appendix. It’s a helpful tool for engaging your child in a discussion of his strengths, challenges and goals.

* Parents Seek Help Discussing Autism with Newly Diagnosed 9 Year Old, an Autism Speaks blog post by psychologist Lauren Elder  

* Should You Tell your Child about his/her Autism Diagnosis? A video interview with autism educator Stephen Shore.

You may want to check out Autism Speaks list of Social Networks to find sites where you can chat with other parents on how they handled “the talk.”

Thanks again for your question. Please let us know how you and your son are doing with a comment below or by emailing us again at gotquestions@autismspeaks.org.

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The Autism Speaks blog features opinions from people throughout the autism community. Each blog represents the point of view of the author and does not necessarily reflect Autism Speaks' beliefs or point of view.