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OREOS - A New Currency

Annie Lubliner Lehmann, a freelance writer for more than twenty-five years, has published articles in many newspapers and magazines including the New York Times and Detroit Free Press. Her most recent book, The Accidental Teacher – Life Lessons from My Silent Son is a heartfelt memoir about self-discovery rather than illness that uses insight and humor to weave a tale rich with kitchen-table wisdom. She resides in Michigan with her husband and two of three children.

Jonah lumbers in unsteadily, using the tips of his fingers to carry a 32 sports bottle tray of water by its shrink wrap.   At first glance he looks like any other six foot two, 29 year old delivery person.   But he is accompanied by a woman who prompts him every step of the way. 

“Here Jonah,” she says pointing to the space I had cleared in the garage. “Put it here.”   It’s a good day and he listens. 

I give him a hug, after all I am his mom, and invite him in for the non-monetary tip he knows to expect —   Oreos.  Cookies.  Now that’s a language Jonah understands.

Jonah is non-verbal, requires 24/7 supervision, and has no attention span or impulse control.  He has severe autism and even in the best economy hasn’t been able to handle a job— not that we haven’t tried.   Still I don’t know that I can blame him for running away from every paper shredder and hanger sorter he has been handed. 

Throughout the years we tried our best to think “outside the box,” to be honest about who Jonah was and what he was capable of doing.   And though we worked hard to encourage use of language, interaction and independence, the gains he made, modest at best, often left us feeling like we were banging our heads against the wall. 

At one point we talked about starting a farm cooperative perhaps in partnership with one of Michigan’s many universities. Jonah likes animals and being physically active, especially outdoors.  Staff could be drawn from students interested in special education, psychology, social work, various therapeutic fields. Agricultural students could run the farm while business students could manage the accounting end of things.  But when I proposed the idea to the administrators who oversee such decisions, I was told, “the days of funny farms are over.” By that time, having doors slammed in my face had become old hat.     

As Jonah approached his 18th birthday we struggled but eventually set up for him, a good long-term living situation with fitting roommates and responsible caregivers.  That he lives less than a mile from our home didn’t hurt matters.

Still there were 16-hour days to fill, no small challenge considering that Jonah is a shoot from the hip young man who does what he wants, not what he is told.   Work programs rightly consider him “too high maintenance” for hire, and day programs, while willing to take him, remain depressing warehousing affairs.  What could we do?

One afternoon as I was loading heavy cases of bottled water into my car, I thought of my able-bodied Ashton Kutcher look-a-like son. If I hated lugging bottles in and out of my trunk, certainly there had to be others who felt the same way.  What if Jonah and his aide, the one he is always required to have, delivered trays of water bottles to homes and offices?

Jonah is a longstanding devotee of warehouse clubs with their free food samples and aisles of items he loves to look at in food magazines and catalogues. Heavy lifting is often considered therapeutic for people with the kind of sensory issues Jonah has, and besides water bottles being unbreakable, they are rarely urgently needed, an accommodation that would be helpful on Jonah’s occasional “bad days.” 

“We could do this,” I told my husband. 

I put up a website, made cards and hung posters accruing a list of 35 customers, many of them friends and neighbors. All really do appreciate the service Jonah provides. The money he makes in tips, which is negligible after paying for gas and mileage, is almost beside the point.  He is busy doing something purposeful within the community, becoming reacquainted with people who haven’t seen him in years. 

Nothing is perfect.  So many variables go into shaping a life and Jonah’s story is his alone. But despite the skyrocketing autism statistics, the advantage he and others of his generation have is that they are being raised in parental homes with families who can have a hand in staging improved futures.

Even today, it is hard to look at Jonah and not wonder what he might have become, as a person, husband, father, and professional. But at 29, I see, a reasonably happy and content young man munching on an Oreo, and am grateful for the perfect compensation we have figured out for his little bit of a job.



The Autism Speaks blog features opinions from people throughout the autism community. Each blog represents the point of view of the author and does not necessarily reflect Autism Speaks' beliefs or point of view.