Autism Care Network
The Autism Care Network is the first and only network of its kind focused on better autism care, delivered at scale and at speed, to improve health and quality of life for children with autism and their families throughout North America. Launched in April 2021, the Network is supported by Autism Speaks, AIR-P, the J. Donald Lee and Laurelle Lee Family Foundation and PCORnet.
The Autism Care Network is a groundbreaking shift that transforms how better care is developed, connecting the dots between families, researchers, and health care teams to continuously improve whole-person and whole-family autism care. As a learning health system, the learning begins with patient insights, which drive research questions to understand what treatments are most helpful for which patients. Then these findings are shared to providers across the Network and in local communities. This significant shift in autism care improvements accelerates research findings and gets them into provider’s offices years earlier than traditional research.
Here’s how it works: Children with autism and their families visit their healthcare provider's office. This data becomes part of an ongoing cycle of information sharing and research that turns into real life help for families – not just your family, but thousands of families across North America. And if you don’t live near a Network site, the Network partners with ECHO Autism to provide virtual learning to empower local providers with knowledge to provide the best care possible to families, where and when they need it.
For more than 15 years, the Autism Treatment Network has made fundamental improvements in the care of children with autism and their families. With the support of Autism Speaks and the Autism Intervention Research Network on Physical Health, funded by the Health Resources and Services Administration, the ATN brought together leading children’s hospitals and academic institutions to develop best practices in clinical care.
The Autism Care Network is a significant shift in the evolution of the Network into a learning health system, where patient insights drive research questions and continuous learning accelerates better health care practices. By adopting innovative research methods built on real-time analysis of embedded clinical data and family priorities, the Network drives rapid and significant effects on quality care, quality of life and reach into underserved communities.
With 20 sites across the United States and Canada – and more sites joining each year – the Autism Care Network aims to address disparities in access to care. Through innovative peer-to-peer data-sharing and patient insights, people across the spectrum will benefit sooner from research findings, be empowered to reach their full potential and improve their quality of life — faster and regardless of geography.
The 20 Autism Care Network sites are:
- Autism Center of Hospital for Special Care
- Children’s Hospital Los Angeles- Boone Fetter Clinic
- Children’s Hospital of Philadelphia (CHOP)
- Cincinnati Children's Hospital Medical Center
- Glenrose Rehabilitation Hospital and University of Alberta
- Holland Bloorview Kids Rehabilitation Hospital
- Metrohealth Medical Center; Metrohealth Autism Assessment Clinic (MAAC)
- Munroe-Meyer Institute, University of Nebraska Medical Center
- Nationwide Children’s Hospital
- Phoenix Children’s Hospital
- Prisma Health-Upstate
- The Center for Autism & Neurodevelopmental Disorders at UC Irvine
- The Center for Autism and Developmental Disorders at University of Pittsburgh Medical Center
- The Lurie Center for Autism
- University of Massachusetts Medical School, E.K. Shriver Center and The Center for Autism and Neurodevelopmental Disorders (CANDO)
- University of Missouri - ECHO Autism Communities
- University of Rochester Medical Center - Golisano Children's Hospital
- University of Virginia Children’s Hospital
- Vanderbilt University Medical Center
- Waisman Center at University of Wisconsin-Madison