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Autism Registry

Rhode Island Creates First State Autism Registry

Voluntary registry will advance research and public advocacy by gathering information on individuals with autism statewide
September 16, 2013

The Rhode Island Consortium for Autism Research and Treatment (RI-CART) is creating the first statewide registry of children and adults with autism. The voluntary registry will support autism research and public advocacy by providing a rich source of anonymous information about families affected by autism, their health and quality of life, and their access to services.

Rhode Island Autism Registry to be Created with $1.2 Million Grant

August 22, 2013

A Rhode Island-based consortium has won a $1.2 million grant to establish a first-of-its-kind registry of people with autism.

With the grant from the Simons Foundation, the Rhode Island Consortium for Autism Research and Treatment (RI-CART) will register 1,000 Rhode Islanders over three years. The confidential registry will eventually attempt to enroll every Rhode Islander who suffers from the neurological disorder, in the hope of gathering an unparalleled resource for autism researchers: a rigorously diagnosed and diverse selection of prospective study subjects.