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Autism Tissue Program

Creates Largest Source of Autism Research Data to Date

The addition of Autism Genetic Resource Exchange (AGRE) data will help create the largest multidisciplinary source of autism research d

December 12, 2011

NEW YORK, N.Y. (DECEMBER 12, 2011) – Autism Speaks – North America’s largest autism science and advocacy organization – joins the National Institutes of Health (NIH) in announcing the addition of Autism Speaks Autism Genetic Resource Exchange (AGRE) as a data federation site for the National Database for Autism Research (NDAR).  The addition of AGRE data will help create the largest multidisciplinary source of autism research data to date.

Findings suggest how genes and environmental stresses may interact to cause autism
November 07, 2011


  In recent years, scientists have identified rare genetic mutations that in and of themselves can produce autism. They have likewise found a large number of genetic changes that increase the risk that a child will develop this disorder. However, fewer than 20 percent of those with an autism spectrum disorder (ASD) harbor identifiable gene defects directly related to the disease.

Many opportunities are available for families to participate in autism research. You can join a clinical trial, enroll in a research study, contribute to our rich genetic database or participate online by adding your family information to a research database. Nearly 90 percent of children with cancer are enrolled in clinical trials--contrasted with only 5 percent of children with autism. Your participation can make a difference in the lives of all who struggle with autism.