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Rhode Island Autism Registry to be Created with $1.2 Million Grant

A Rhode Island-based consortium has won a $1.2 million grant to establish a first-of-its-kind registry of people with autism.

With the grant from the Simons Foundation, the Rhode Island Consortium for Autism Research and Treatment (RI-CART) will register 1,000 Rhode Islanders over three years. The confidential registry will eventually attempt to enroll every Rhode Islander who suffers from the neurological disorder, in the hope of gathering an unparalleled resource for autism researchers: a rigorously diagnosed and diverse selection of prospective study subjects.

The project’s leaders say that Rhode Island is uniquely positioned to carry out such a project because of the state’s compact size and tradition of collaboration among academia, government and the private sector.