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Calls to Action

Parents as Partners in Research

How to Participate in the Largest Autism Genetic Research Project
April 23, 2007

NAAR is currently looking for “Parents as Partners in Research” —families willing to participate in the Autism Genome Project (AGP). AGP is the largest study ever conducted to find the genes associated with inherited risk for autism.

 

The first phase of the NAAR AGP is under way, and consists of two scans of the human genome, searching for autism susceptibility genes. Over 7,000 samples from over 1,500 multiplex families (families with two or more affected children) are currently being screened. However, this is the just first step in the journey. After the results of this scan are released in late-2005, more samples will be needed to identify the genes related to the inherited risk for autism. Help us increase the sample for this research.

 

The following facilities are part of NAAR's AGP collaboration and actively seeking new families to participate. Bookmark this page if you don't see a study near you and re-visit us often as we will be adding more information regularly. Additionally, you can email us at dsoto@naar.organd let us know where you are located and we will send you an alert when something becomes closer to your home.

 

And, please read the particulars of these studies carefully – many times they have recruiters available in YOUR area and it is not necessary to travel the location of the study – they will come to you.

Autism Genetics Study
Vanderbilt University Center for Human Genetics Research in Nashville
For information on participation, eligibility and the research itself, click here.

Family Genetics Studies Program
Mt. Sinai Medical Center in New York City
For information on participation, eligibility and the research itself, click here

Researchers will be recruiting families at the June 4th Walk F.A.R. for NAAR in and at the June 12th Walk in Westchester/ FairfieldNew York City

Genetic Studies in Autism
Duke Center for Human Genetics
For information on participation, eligibility and the research itself, click here.
Researchers will be recruiting families at the June 5th Walk F.A.R. for NAAR in Baltimore.

AGP Enrollment Questions
Contact NAAR Community Outreach Coordinator Denise Soto at (888) 777-6227, ext. 38, or via e-mail at dsoto@naar.org

About the NAAR Autism Genome Project (AGP)
The NAAR Autism Genome Project is a public/private research partnership involving approximately 50 academic and research institutions that have pooled their DNA samples in a collaborative effort. It is designed to enable doctors to biologically diagnose autism and enable researchers to develop universal medical treatments and a cure. The NAAR Autism Genome Project expects initial results from the DNA array scan by December 2005