This is a post by Dr. Paul Carbone, a pediatrician and the proud father of a child with autism, who will be speaking at the Autism Speaks National Conference for Families and Professionals next month! Click here to learn more about the two day conference July 26-27 in Columbus, OH!
As a parent of a child with autism and a pediatrician I feel have a unique perspective on the medical care of children with ASD. I am looking forward to my opportunity to speak at the upcoming Autism Speaks National Conference for Families and Professionals in July and am hoping to meet as many attendees as possible.
During my sessions at the conference I have been asked to address the issue of planning for the medical needs of children with ASD. For children with ASD and primary care providers this takes place within the “medical home”, which is not only a place but rather a process of care that emphasizes “home” as a headquarters for care and a place where families feel recognized, welcomed and supported. I’ll share some tips about how to cultivate parent-provider partnerships that are necessary to ensure that medical issues are adequately addressed. We’ll also discuss how care that is coordinated with other providers outside the medical home is essential to improve outcomes for children with ASD. We’ll also look at how we as parents and providers can maximize community participation for children with ASD. I am passionate about the concept of participation in meaningful activities as a way to define the health of those with disabilities rather than dwelling on the diagnosis as a definition of health. Addressing and treating associated medical conditions in children with ASD is an important part of maximizing a their ability to participate in fun and meaningful activities.
I look forward to meeting and spending time with those of you who make the trip to Columbus in July!
Paul Carbone, MD
Associate Professor of Pediatrics, University of Utah
Proud father of Ben