25 random things about motherhood, autism-style: An Update 

Wednesday, January 16, 2013 Autism Speaks View Comments

This post is by Laura Shumaker, writer and autism advocate. Her adult son Matthew has autism. You can read the first three chapters of her book 'A Regular Guy: Growing Up with Autism' here. Laura writes for SFGate and you can see the original posting here.


Hopeful Parents

 

1) My husband and I planned on having our first child after two years of marriage. Matthew beat us by 2 months.

2) I took Matthew on a job interview when he was eight weeks old because I couldn’t bear to leave him with a babysitter.

3) The first person that told me that Matthew, then three, was developmentally delayed was a speech therapist. She was also the first person who didn’t mention how adorable he was.

4) My husband and I coached Matthew before his next evaluation with a child psychologist. We read him Richard Scary’s Best Word Book Ever.

5) When the child psychologist confirmed that Matthew was developmentally delayed, I thought that meant he could catch up. I really did.

6) Matthew lined up toys and laughed too hard at sprinklers in the garden. None of the booksmentioned this behavior in the milestone department. What was going on?

7) I was angry with Matthew for being stuck on the sprinklers, and the drains, and the lights, and I felt guilty that I was angry.

8 –    When Matthew’s baby brother Andy charmed family and friends with his personality and smarts, my love for Matthew deepened.

9) Andy is now 24. My most cherished childhood memories with him are the walks we took while Matthew was with speech therapist/psychologists/occupational therapists etc.

10) Matthew’s youngest brother, John, was one week old when we tried our first miracle cure, auditory training. He is now 20 and helps Matthew film “rock-u-mentaries”. More about that another time. He is even more patient with Matthew than I am.

 

11) Matthew is WAY more capable than I ever dreamed he would be. WAY. He’s hardest working person I know.

12) It used to ruin my day when people stared at Matthew, but it doesn’t anymore.  I get that my son’s behavior can be stare worthy, and that people are curious.

13) It ruins my day when Matthew tells me he is lonely….

14) …but that happens less frequently because Matthew has friends. Isn’t that great?

15)  The year I accepted that Matthew’s autism was lifelong was also the year I had a mini-breakdown. O.K., It was more than a mini-breakdown.

16) The best things I ever did was find a good therapist.

17) My sense of humor has saved me, and it gets better every year.

18) There is nothing more genuine than one of Matthew’s smiles.

19) There are more kind people in the world than there are jerks.

20) I cried at every IEP except for the last one.

21) I never blamed vaccines.

22) I’ve met some of the best people because of Matthew.

23)  My husband I have stayed together-I hear that is unusual.

24) I am luckier that most.

25) The lump in my throat will never go away.

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