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Sobering Picture of Young Adults with Autism

The transition out of the educational system and the process of navigating the new world of adult services can be difficult and complicated.  The study in Pediatrics titled Postsecondary Education and Employment among Youth with an ASD provides important information about the outcomes of individuals with an ASD once they leave the educational system.  We need to continue to evaluate the transition outcomes of all individuals with an ASD, and to develop meaningful transition plans that lead to full lives that may include the opportunity to participate in post-secondary educational programs and to obtain and maintain gainful employment.

The article 'Autistic children fall behind others as adults' was featured in the Press of Atlantic City. You can read the original post here.

One in 3 young adults with autism have no paid job experience, college or technical school nearly seven years after graduating from high school, a study finds. That’s a poorer showing than those with other disabilities, including those who are mentally disabled, the researchers said.

With roughly half a million autistic children reaching adulthood in the next decade, experts say it’s an issue policymakers urgently need to address.

The study was done well before unemployment peaked from the recession. The situation today is tough even for young adults who don’t have such limitations.

Ian Wells, 21, of Allentown, N.J., is autistic and won’t graduate from high school until next year. He is unlikely to attend college because of his autism. He wants a job but has found only unpaid internships and is working part time and unpaid at a fastener factory.

He’s a hard worker, with good mechanical skills, but he has trouble reading and speaking, said his mother, Barbara Wells. She said his difficulties understanding social cues and body language can make other people uncomfortable.

“I’m very afraid” about his prospects for ever finding long-term employment, she said. “It keeps me up at night.”

The study, published online today in Pediatrics, was based on data from 2007-08. It found that within two years of leaving high school, more than half of those with autism had no job experience, college or technical education.

Things improved as they got older. Yet nearly seven years after high school, 35 percent of autistic young adults still had no paid employment or education beyond high school.

Those figures compare with 26 percent of mentally disabled young adults, 7 percent of young adults with speech and language problems, and 3 percent of those with learning disabilities.

Those with autism may fare worse because many also have each of the other disabilities studied.

The researchers analyzed data from a national study of children receiving special-education services, prepared for the U.S. Department of Education. About 2,000 young adults with 1 of 4 types of disabilities were involved, including 500 with autism.

It’s the largest study to date on the topic, and the results “are quite a cause for concern,” said lead author Paul Shattuck, an assistant professor at Washington University’s Brown School of Social Work in St. Louis.

“There is this wave of young children who have been diagnosed with autism who are aging toward adulthood. We’re kind of setting ourselves up for a scary situation if we don’t think about that and how we’re going to help these folks and their families,” Shattuck said.

Government data suggest that 1 in 88 U.S. children have autism, and there’s evidence that the rate is rising.
Within the next 10 years, more than 500,000 children with autism will reach adulthood, said Peter Bell, vice president for programs and services at Autism Speaks, an advocacy group that helped pay for the study.

“It’s a huge, huge issue,” Bell said. “Unfortunately there are many families that really struggle to understand what that transition ultimately entails. … They face the reality of having a child who may potentially not be able to have enough services to keep them busy during the day.”

“It’s only going to get worse,” Bell said.

His own 19-year-old son has autism and is being home-schooled, and Bell has hired therapists to prepare him for jobs and other life skills.

Carol Schall, a special-education policy specialist, said the results confirm smaller studies showing difficulties facing children with autism as they transition into adulthood, and also highlight a need for better job training offered in public schools for special-education students.

She is involved in research at Virginia Commonwealth University investigating whether on-the-job training and teaching social cues to high school students with autism makes them more employable.

Children are taught a range of practical skills and appropriate behavior. “It takes a much higher degree of intensity for them to learn skills” than for other children, she said.

Preliminary results show this training has helped children with autism find and keep jobs, she said.

Autism Speaks offers several resources for adults on the autism spectrum. Here are some links:

Transition Tool Kit
A
dvancing Futures for Adults with Autism (AFAA)
Autism in the Workplace