What is the ATN?
For years autism has been considered by some, including many insurance companies, a mental health issue, not a medical one. As a result, the medical issues associated with autism have been greatly ignored, and in many cases insurers have not covered medical treatment. In fact, despite increasing understanding in recent times, many doctors themselves have difficulty providing effective care and treatment for autistic patients. The Autism Treatment Network (ATN) was established to address these issues.
The ATN is the nation's first network of hospitals and physicians dedicated to improving medical care for children and adolescents with autism. The ATN offers families medical care from doctors highly experienced in helping individuals with autism and in providing treatment for associated conditions such as gastrointestinal and sleep disorders. ATN doctors are dedicated to finding better ways to manage the health of children with autism and sharing their increasing knowledge across the wider medical community. And as medical treatments become better defined and recognized it is the aim of the ATN to see insurers routinely cover autism treatment.
Overview - The ATN consists of active clinical programs - groups actively seeing patients and providing ongoing care to children and families.
- The ATN clinicians have a history and willingness to share current best practices with a wide variety of other clinical programs.
- The ATN leaders and members have a real commitment to treatment - based on strong clinical experience - to finding better ways to identify and manage the health conditions of children with autism.
- The ATN has developed a common protocol for multidisciplinary assessment of children with autism - with common domains and measures.
How did the ATN get started?
The ATN began as a joint venture between the Northwest Autism Foundation in Oregon and Mass General Hospital for Children in Boston. Their initial association concentrated on certain medical issues of children with autism, and in the course of their studies they found that medical care of individuals with autism was far less than ideal. A major part of the problem was the absence of any organized group devoted to defining a high standard of medical care for autistic patients. The ATN was foreseen as filling this need, and the initial steps in its formation included the recruitment of a group of distinguished physicians and researchers who would define its mission and goals. Cure Autism Now recognized that this innovative network could play a valuable role in its mission to identify the means of preventing, treating and ultimately curing autism. To this end, Cure Autism Now joined forces with the Autism Treatment Network incorporating it as one of its key research programs. Cure Autism Now and Autism Speaks recently announced plans to combine operations, bringing together the two leading organizations dedicated to accelerating and funding biomedical research into the causes, prevention, treatments and cure for Autism Spectrum Disorders.
Which institutions participate in the ATN?
ATN Clinical Coordinating CenterMassachussetts General Hospital (Boston, MA)
James Perrin, M.D., Director, Clinical Coordinating Center
Kirsten Klatka, M.S.W., Clinical Coordinator
ATN Data Coordinating Center
EMMES Corporation (Rockville, MD)
Donna Brown, Project Manager
Traci Clemons, Ph.D., Statistician
Kristine Nelson, R.N., Systems Manager
Traci Scheer, Data Manager
www.emmes.com
University of Arkansasand Arkansas Children's Hospital (Little Rock, AR)
Jill James, Ph.D.
Eldon Schulz, M.D.
Jill Fussell, M.D.
Contact: Nancy Lowery
Phone: (501) 364-1492
lowerynancyk@uams.edu Kaiser Permanente Medical Care Program
Northern California (San Jose, CA)
Lisa Croen, Ph.D.
Pilar Bernal, M.D.
University of Colorado Denver, School of Medicineand The Children's Hospital (Denver, CO)
Cordelia Robinson, Ph.D., R.N.
Ann Reynolds, M.D.
Susan Hepburn, Ph.D.
Contact: Harriet B. Austin, Ph.D.
Clinical Coordinator
Phone: (720) 777-6602
Kennedy Krieger Institute (Baltimore, MD)
Rebecca Landa, Ph.D.
Stewart Mostofsky, M.D.
LADDERS/Mass General Hospital (Boston, MA)
Margaret Bauman, M.D.
Martha Herbert, M.D., Ph.D.
Contact: Christine Ferrone
Phone: (781) 449-6074 ext.1245
University of Missouri (Columbia, MO)
Judith Miles, M.D., Ph.D.
Stephen Kanne, Ph.D.
Contact: Thompson Center Clinic
Phone: (573) 882-6081
thompsoncenter.missouri.edu Columbia University Medical Center (New York, NY)
Agnes Whitaker, M.D.
Reet Sidhu, M.D.
Contact: Abigail Batchelder, M.P.H.
Phone: (212) 342-2117
www.newyorkautism.columbia.edu University of Rochester (Rochester, NY)
Susan Hyman, M.D.
Tristram Smith, Ph.D.
Contact: Carol G. Stamm
Sr. Health Project Coordinator
Phone: (585) 275-0953
www.stronghealth.com/services/childrens/Centers/kirchcenter.cfmCarol_stamm@urmc.rochester.edu Cincinnati Children's Hospital Medical Center (Cincinnati, OH)
Patricia Manning-Courtney, M.D.
Cynthia Molloy, M.D., M.S.
Contact: Terry Mitchell
Clinical Research Coordinator
Phone: (513) 636-1665
Email:
terry.mitchell@cchmc.org Bloorview Kids Rehab, Surrey Place Centreand The Hospital for Sick Children (Toronto, ON, Canada)
Wendy Roberts, M.D.
Alvin Loh, M.D.
Contact: Noel Grzetic
Phone: (416) 925-5141 ext. 2270
noel.grzetic@sickkids.ca Oregon Health & Science University (Portland, OR)
Robert Steiner, M.D.
Darryn Sikora, Ph.D.
Contact: Karen Grant, Psy.D.
Phone: (503) 418-1832
www.ohsu.edu/cdrc/clinical/portland/autism.htmlUniversity of Pittsburgh (Pittsburgh, PA)
Nancy Minshew, M.D.
Cynthia Johnson, Ph.D.
Benjamin Handen, Ph.D.
Contact (7 and younger): Intake Clinic
Phone: (412) 692-5561
Contact (8 and older): Sarah McAuliffe-Bellin, M.Ed.
Study Coordinator Merck Child Outpatient Clinic
Phone: (412) 235-5447
Email:
mcauliffebellinsj@upmc.eduVanderbilt University Medical School (Nashville, TN)
Wendy Stone, Ph.D.
Beth Malow, M.D.
Contact email:
autismclinic@vanderbilt.edu Baylor College of Medicine (Houston, TX)
Diane Treadwell-Deering, M.D.
Daniel Glaze, M.D.
University of Washington (Seattle, WA)
Bryan King, M.D.
Raphael Bernier, Ph.D.
Contact: Raphael Bernier, Ph.D.
Assistant Professor
Department of Psychiatry and Behavioral Sciences
Phone: (206) 685-7585
Email:
rab2@u.washington.edu
What is the benefit of the ATN to families?
1. Families have access to a coordinated multi-disciplinary team of physicians and clinicians with significant experience with ASD's.
2. Sites provide access to a committed core team of specialists including:
- Pediatricians
- Psychologists/Neuropsychologists
- Pediatric neurologists
- Gastroenterologists
- Sleep specialists
- Immunologists
- Ancillary care services (speech therapy, OT, PT, nutrition)
What is the benefit of the ATN to the participating institutions?
- Access to standardized protocols and assessments
- Access to a national database
- Ability to submit research proposals via the ATN database
- Access to a community of autism physicians
- Access to empirically derived treatment practices
- Highest quality data collection on well-characterized individuals across a variety of disciplines
- Latest treatment practice parameters
Who can I contact for more information?
Nancy Jones, Ph.D.
Program Director
Phone: 1 (888) 8-AUTISM
Email:
atn@autismspeaks.orgMailing Address and Fax:Autism Speaks
5455 Wilshire Blvd.
Suite 2250
Los Angeles, CA 90036-4234
Fax: 323-549-0450
Grant Mailing Address:ATN-07-01 Submission
Autism Speaks
5455 Wilshire Blvd. Suite 2250
Los Angeles, CA 90036
email:
atngrants@autismspeaks.org View an informational ATN one-sheet here